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Clinical Utility of the Death Literacy Index in Canada

A Mixed-Methods Study

Bibliographic Data

ID13629686
AuthorsCheryl Holland (University of Ottawa, corresponding author), Charmaine Holland (0009-0009-5926-8160, University of Ottawa), Christine Mcpherson (0000-0003-1344-0948, University of Ottawa), Nick Busing (University of Ottawa), Paul Hébert (Division of Palliative Care, Bruyère Research Institute)
Year2025
Pages302228251359371-302228251359371
Publication date2025-07-30
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueOMEGA - Journal of Death and Dying (JOURNAL)
Journal identifiersISSN: 0030-2228 • E-ISSN: 1541-3764
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228251359371
PMID40736277
OpenAlexW4412753672
LanguageEN
References cited14

Programs providing end-of-life education require a standardized tool to identify knowledge gaps and evaluate programming. The aims of this mixed methods study was to examine the perceived clinical utility of the Death Literacy Index (DLI) in the Canadian context. An online survey and focus groups captured quantitative and qualitative data from end-of-life care stakeholders. The survey included the DLI and a measure of clinical utility. Participants rated the DLI positively on a 5-point Likert scale: acceptability (4.3), relevance (3.9), and usefulness (4.1). Qualitative findings supported these ratings and highlighted areas for improvement, including simpler language and more inclusive cultural and spiritual content. Ratings for usefulness reflected the index's potential for initiating end-of-life discussions and program evaluation, though participants noted it may need more specificity to capture nuanced understandings of death literacy. Overall, the findings suggest the DLI requires further refinement and validation to enhance its applicability in the Canadian context

Context (archaeology · Developmental psychology · Focus group · Index (typography · Likert scale · Literacy · Medical education · Multimethodology · Pedagogy · Qualitative property · Qualitative research · Relevance (law · Scale (ratio · Social science · Sociology · World Wide Web · Applied Psychology · Computer Science · Grief, Bereavement, and Mental Health · Medicine · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology

  • The Death Literacy Index

    Open Access•Sok Leng, Sok Leng Che et al.•Frontiers in Public Health•2023

  • The Death Literacy Index

    Open Access•Kristine Van Dinther, Kerrie Noonan et al.•OMEGA - Journal of Death and Dying•2025

  • Validity and Reliability of the Turkish Version of the Death Literacy Index

    Open Access•Vahide Semerci Çakmak, Vahide Semerci et al.•OMEGA - Journal of Death and Dying•2022

  • Developing a death literacy index

    R Leonard, Kerrie Noonan et al.•Death Studies•2021

  • Research on multiculturalism in Canada

    Open Access•J Berry•International Journal of…•2013

Citation velocityhistorical
Highly citedNo

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Open DOIOpen Access
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