The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis
Bibliographic Data
| ID | 13899241 |
|---|---|
| Authors | Sofia Nilsson (0000-0002-8847-9559, University of Gothenburg, corresponding author), Nina Malmström (0000-0001-6878-3011, University of Gothenburg), Ingela Nygren (0000-0002-0091-924X, Uppsala University Hospital), Joakim Öhlén (0000-0003-2429-8705, University of Gothenburg), Birgitta Jakobsson Larsson (0000-0003-0404-5938, Uppsala University Hospital), Audrey Ozanne (0000-0003-1737-3359, University of Gothenburg) |
| Year | 2025 |
| Volume | 30 |
| Issue | 1 |
| Publication date | 2025-01-19 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Adolescence and Youth (JOURNAL) |
| Journal identifiers | ISSN: 0267-3843 • E-ISSN: 2164-4527 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/02673843.2025.2454991 |
| OpenAlex | W4406593556 |
| Language | EN |
| Citations received | 1 |
| References cited | 28 |
Amyotrophic Lateral Sclerosis (ALS) presents significant challenges for affected families. The aim for this study was to assess the feasibility of using the Strengths and Difficulties Questionnaire (SDQ) with adolescents and parents with and without ALS. The method involved repeatedly distributing the questionnaire to evaluate its content and structure within this group. The SDQ Prosocial Behaviour subscale and total difficulties score was calculated, along with median values and standard deviations. Parent-adolescent agreement was assessed using intraclass correlations. Data were collected from 11 Swedish families, including 14 adolescents (aged 8-25), 9 parents with ALS, and 8 co-parents. The findings revealed differences between parent and adolescent SDQ scores, emphasizing the need for adolescents' self-assessments. Their SDQ scores did not indicate significant difficulties, suggesting that most were coping well with everyday life. However, there is significant heterogeneity in the experiences and needs of adolescents. A larger study is needed to confirm its usability
Amyotrophic lateral sclerosis · Developmental psychology · Disease · Mental health · Pathology · Psychiatry · Clinical Psychology · Family and Disability Support Research · Family Caregiving in Mental Illness · Family Support in Illness · Medicine · Psychology
Adolescence
Psychometric Properties of the Strengths and Difficulties Questionnaire
The age of adolescence
A Guideline of Selecting and Reporting Intraclass Correlation Coefficients for Reliability Research
Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis
Parental and child adjustment to amyotrophic lateral sclerosis
Adolescents' challenging and grief-filled transitions when living with a parent with ALS
| Citations per year | 1 |
|---|---|
| Citation span | 2025 - 2025 (1) |
| Highly cited | No |