Other Voices, Other Rooms
Reflections on Talking to Young Men with Duchenne Muscular Dystrophy and Their Families About Transition to Adulthood
Bibliographic Data
| ID | 14896457 |
|---|---|
| Authors | David Abbott (0000-0002-3447-5368, School for Policy Studies University of Bristol Bristol UK, corresponding author) |
| Year | 2012 |
| Volume | 26 |
| Issue | 3 |
| Pages | 241-250 |
| Publication date | 2012-05-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Children & Society (JOURNAL) |
| Journal identifiers | ISSN: 0951-0605 • E-ISSN: 1099-0860 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/j.1099-0860.2012.00437.x |
| OpenAlex | W2032475629 |
| Language | EN |
| Citations received | 13 |
| References cited | 14 |
Research which involves disabled children and young people now constitutes a fairly well‐established body of work in the social sciences. However, discussion on the role of the (normally adult) researcher has arguably been marginalised in the much‐needed exploration of disabled children's ‘voices’. Drawing on a qualitative study of the transition to adulthood for young men with Duchenne muscular dystrophy, this paper reflects on the interview ‘encounter’ between the interviewer, young men and their families. It suggests that we may learn more about the experiences of disabled children and young people if we can find ways of describing the co‐production of responses, non‐responses and meaning within research interviews
Developmental psychology · Duchenne muscular dystrophy · Interview · Meaning (existential · Psychotherapist · Qualitative research · Social science · Sociology · Transition (genetics · Young adult · Children's Rights and Participation · Gender Roles and Identity Studies · Gender Studies · Medicine · Psychology · Youth Education and Societal Dynamics
Gender performativity during interviews with adolescent boys
The Importance of Implementing a Transition Strategy for Patients with Muscular Dystrophy
I just try to be independent as much as possible’
Support as a double-edged sword
You find out what’s important’
Wasting precious time’
A survey of disabled children and young people’s views about their quality of life
Realizing autonomy
Disabled Children's Voices
Living with Duchenne Muscular Dystrophy
The Integrated Use of Audio Diaries, Photography, and Interviews in Research with Disabled Young Men
Becoming men
Researching disabled children and young people's views on decision-making
Adaptive disability
The Challenge and Challenging of Childhood Studies? Learning from Disability Studies and Research with Disabled Children
Silence in the Context of ‘Child Voice’
Including all children
Where Are the Children's Experiences? Analysing Social and Cultural Exclusion in 'Special' and 'Mainstream' Schools
Men on the margin
Shifting horizons
Hegemonic Masculinity
Moral tales
| Citations per year | 0.93 |
|---|---|
| Citation span | 2012 - 2025 (14) |
| Highly cited | No |