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Experiences of, and motivations for, disclosing HIV to social and familial networks

Considering the social and relational domains of HIV disclosure

Bibliographic Data

ID15099587
AuthorsNathanael Wells (0000-0002-2827-8480, Kirby Institute for Infection and Immunity in Society, UNSW Sydney, Sydney, New South Wales, Australia, corresponding author), Dean Murphy (0000-0003-2752-7091, Kirby Institute for Infection and Immunity in Society, UNSW Sydney, Sydney, New South Wales, Australia), Jeanne Ellard (0000-0003-0213-3010, Australian Research Centre in Sex, Health and Society, La Trobe University, Melbourne, Victoria, Australia), Steven P Philpot (0000-0002-5398-5793, Kirby Institute for Infection and Immunity in Society, UNSW Sydney, Sydney, New South Wales, Australia), Garrett Prestage (0000-0003-3917-8992, Kirby Institute for Infection and Immunity in Society, UNSW Sydney, Sydney, New South Wales, Australia)
Year2023
Volume25
Issue11
Pages1483-1497
Publication date2023-11-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueCulture Health & Sexuality (JOURNAL)
Journal identifiersISSN: 1369-1058 • E-ISSN: 1464-5351
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/13691058.2022.2161638
PMID36639148
OpenAlexW4315929281
LanguageEN
Citations received4
References cited37

For people living with HIV, decisions about when, how and who to tell about their HIV status can involve navigating complex social, legal and health domains. With a focus on disclosure to broader social and familial networks, we explored the experiences of, and motivations for, HIV (non-)disclosure among recently diagnosed people living with HIV in Australia. Semi-structured interviews were conducted with 35 people diagnosed with HIV from 2016 onwards, of whom 25 completed follow-up interviews. Participants commonly reported anticipating negative responses and rejection from others when considering whether to disclose their HIV status. Some participants also took on the role of ensuring others' wellbeing when disclosing (or not), even as they themselves needed emotional support. Finally, some participants felt it important to be open about their HIV status to raise awareness of HIV and challenge HIV-related stigma. Our findings highlight the complex relational and social contexts that shape HIV disclosure. In addition to supporting individual people living with HIV when disclosing, we argue that educational programmes that target the broader, HIV-negative population are needed to shift the social landscape in which people living with HIV disclose

Environmental health · Family medicine · Focus group · Human immunodeficiency virus (HIV · Population · Psychiatry · Self-disclosure · Social stigma · Sociology · Stigma (botany · Adolescent Sexual and Reproductive Health · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Medicine · Psychology · Social Psychology

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Unique citing works4
Citations per year2
Citation span2024 - 2026 (3)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 4

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