Lived Data
Tinkering With Bodies, Code, and Care Work
Bibliographic Data
| ID | 15216129 |
|---|---|
| Authors | Elizabeth Kaziunas (0000-0003-0001-355X, University of Michigan, corresponding author), Silvia Lindtner (0000-0002-8780-6087, University of Michigan), Mark S Ackerman (0000-0001-9727-1664, University of Michigan), Joyce M Lee (0000-0002-8147-5168, University of Michigan) |
| Year | 2017 |
| Volume | 33 |
| Issue | 1 |
| Pages | 49-92 |
| Publication date | 2017-03-28 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Human-Computer Interaction (JOURNAL) |
| Journal identifiers | ISSN: 0737-0024 • E-ISSN: 1532-7051 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/07370024.2017.1307749 |
| OpenAlex | W2600881429 |
| Language | EN |
| Citations received | 14 |
| References cited | 56 |
Human–computer interaction research on personal informatics in health care has focused on systems that aim to support patient empowerment and enable better health outcomes with data monitoring and tracking. Through examining the lived experience of personal data used to manage chronic illness, we show how such technology design is also the site of radical dependencies, collaborative care arrangements, and wider sociopolitical concerns tied to new forms of technical labor and shifts in medical expertise. Drawing from ethnographic research with open source, do-it-yourself collectives engaged in opening up corporate-controlled type 1 diabetes devices and data, we propose the analytical lens of lived data. Lived data emphasize data as an integral way of living, enacted through a multiplicity of things, relations, and practices, from bodies and needles, social media support groups, and legal processes to writing code, making visualizations, and hacking devices. Building on critical and feminist scholarship of human–machine relations, we articulate the work that goes into producing and living personal data, the physical and emotional costs of data tracking, and the consequences of do-it-yourself as a form of individual empowerment in health and wellness
Biopower · Computer security · Empowerment · Hacker · Health care · Internet privacy · Knowledge management · Political science · Politics · Public relations · Scholarship · Sociology · Computer Science · Innovative Human-Technology Interaction · Persona Design and Applications · Technology Use by Older Adults
Shared motivations, goals and values in the practice of personal science
Co-designing opportunities for Human-Centred Machine Learning in supporting Type 1 diabetes decision-making
‘A gift and a curse’
“I spend more time on the ecosystem than on the disease”
Data Paradoxes
Episodic use
Quantifying the self with others
Intertextual design
Introduction to This Special Issue on the Lived Experience of Personal Informatics
Workshopping Troubles
The optical unconscious of Big Data
Digital mediation of candidacy in maternity care
Sex reconfigured
Teletherapy Matters - Mental health and materialities of care in domestic more-than-digital assemblages
Networking Peripheries
Information Ecologies
The Logic of Care
Coding Freedom
Situational Analysis
Self-Tracking
Programmed Visions
Venture Labor
From Counterculture to Cyberculture
MHealth + Proactive Well-being = Wellth Creation
Human-Machine Reconfigurations
Biomedicalization
Layers of Silence, Arenas of Voice
Hackathons and the Making of Entrepreneurial Citizenship
Hacking with Chinese Characteristics
Boundary-Work and the Demarcation of Science from Non-Science
| Unique citing works | 14 |
|---|---|
| Citations per year | 1,56 |
| Citation span | 2017 - 2025 (9) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 14 |