Women’s experiences of living with lipedema
Bibliographic Data
| ID | 15217902 |
|---|---|
| Authors | Catharina Melander (0000-0003-0313-6002, Luleå University of Technology, corresponding author), Päivi Juuso (0000-0002-7388-069X, Luleå University of Technology), Malin Olsson (0000-0002-4130-1323, Luleå University of Technology) |
| Year | 2021 |
| Volume | 43 |
| Issue | 1-3 |
| Pages | 54-69 |
| Publication date | 2021-07-12 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Care For Women International (JOURNAL) |
| Journal identifiers | ISSN: 0739-9332 • E-ISSN: 1096-4665 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.1080/07399332.2021.1932894 |
| PMID | 34252343 |
| OpenAlex | W3179069780 |
| Language | EN |
| Citations received | 6 |
| References cited | 17 |
Lipedema is a chronic, progressive disease that almost exclusively affects women and often misdiagnosed as obesity or primary lymphedema. Research concerning lipedema is sparse, and there is a lack of studies focusing on women's experiences of living with the illness. We interviewed fourteen women with lipedema with the aim of describing their experiences of living with lipedema. Our results show that women felt controlled by their body, and were fat-shamed and viewed by others as a person who lacked character. They received unsupportive advice on how to manage from healthcare, and blamed themselves while striving to take responsibility
Cancer · Disease · Lymphedema · Pathology · Lymphatic System and Diseases · Medicine · Mental Health and Psychiatry · Obesity and Health Practices
A qualitative study exploring the experiences of individuals living with lipoedema and the impacts it has on their quality of life
Fearing Compassion Under the Weight of Stigma
Health-related stigma, perceived social support, and their role in quality of life among women with lipedema
The Difficulties in Emotional Regulation among a Cohort of Females with Lipedema
The Usefulness of the Application of Compression Therapy among Lipedema Patients-Pilot Study
Younger Women with Lipedema, Their Experiences with Healthcare Providers, and the Importance of Social Support and Belonging
| Citations per year | 1.5 |
|---|---|
| Citation span | 2022 - 2026 (5) |
| Highly cited | No |