Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

A phenomenology of informal caregiving for HIV/Aids in India

Exploring women's search for authoritative knowledge, self-efficacy and resilience

Bibliographic Data

ID15218183
AuthorsShrivridhi Shukla (Rutgers, the State University of New Jersey School of Social Work, New Brunswick, NJ, USA, corresponding author), J L M Mccoyd (0000-0001-8105-8690, Rutgers, the State University of New Jersey School of Social Work, New Brunswick, NJ, USA)
Year2018
Volume39
Issue7
Pages755-770
Publication date2018-04-12
Open AccessNo
TypeARTICLE
VenueHealth Care For Women International (JOURNAL)
Journal identifiersISSN: 0739-9332 • E-ISSN: 1096-4665
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/07399332.2018.1462368
PMID29648942
OpenAlexW2796471915
LanguageEN
References cited31

Women provide informal caregiving across the world and are often expected to provide care even when ailing themselves. We explore the lived experience of 33 impoverished married Indian women living with HIV and caring for their husbands and/or children living with HIV. Drawing on concepts of authoritative knowledge (AK), self-efficacy and resilience, we found a trajectory that reveals barriers to accessing care, yet we also found that women developed strengths and resiliency. Women gather information, develop "environ-info," and deliberatively weigh AK from health workers, family/friends' advice, and their own experiences. Over multiple iterations of this process, they build self-reliance and resilience

Developmental psychology · Family medicine · Human immunodeficiency virus (HIV · Lived experience · Phenomenology (philosophy · Psychological resilience · Psychotherapist · Global Maternal and Child Health · HIV/AIDS Research and Interventions · Medicine · Poverty, Education, and Child Welfare · Psychology · Social Psychology · Gerontology

  • Childbirth and Authoritative Knowledge

    Rayna Rapp, Robbie Davis-Floyd et al.•Childbirth and Authoritative…•1997

  • Family Time

    Michael Bittman, Nancy Folbre•Family Time•2004

  • Authoritative Knowledge and Its Construction

    Brigitte Jordan•Childbirth and Authoritative…•1997

  • Research design

    Open Access•Marcellus Caldas, Miguel Pinto Caldas•Revista de Administração…•2003

  • Birth in four cultures

    Brigitte Jordan•Birth in four cultures•1993

  • Rural women's knowledge of Aids in the higher prevalence states of India

    Open Access•Saseendran Pallikadavath, Abdoulie Sanneh et al.•Health Promotion International•2005

  • Reciprocal Relations Between Emotional Self‐Efficacy Beliefs and Ego‐Resiliency Across Time

    Open Access•Michela Milioni, G Alessandri et al.•Journal of Personality•2015

  • Gendered home-based care in South Africa

    Olagoke Akintola•African Journal of AIDS Research•2006

  • Healthcare infrastructure, contraceptive use and infant mortality in Uttar Pradesh, India

    Open Access•Alok Bhargava, Sadia Chowdhury et al.•Economics & Human Biology•2005

  • Perceived social support, hope, and quality of life of persons living with HIV/Aids

    Open Access•Sushil Yadav•Quality of Life Research•2010

  • The healthcare system in HIV/Aids

    Open Access•Premilla D’cruz•Critical Public Health•2008

  • Household and community responses to HIV and Aids in developing countries

    Open Access•Ian Warwick, Shalini Bharat et al.•Critical Public Health•1998

  • Repatterning Care

    Judith Wuest, Judith Wuest Phd RN•Health Care For Women International•2000

  • Challenges Experienced by Rural Women in India Living With Aids and Implications for the Delivery of HIV/Aids Care

    Adeline M Nyamathi, Sanjeev Sinha et al.•Health Care For Women International•2011

  • Sustaining the Relationship

    Sheila M Bunting•Health Care For Women International•2001

  • Asha-Life Intervention Perspectives Voiced by Rural Indian Women Living With Aids

    Adeline M Nyamathi, Adeline Nyamathi et al.•Health Care For Women International•2015

  • The Effects of Caregiving on Women's Self-Assessed Health Status

    Pam Arnsberger, Una Lynch et al.•Health Care For Women International•2012

  • Literacy Progress in Uttar Pradesh

    Open Access•Vachaspati Shukla, Udaya S Mishra•Indian Journal of Human Development•2014

  • Contextual Influences on Reproductive Health Service Use in Uttar Pradesh, India

    Open Access•Rob Stephenson, Amy O Tsui•Studies in Family Planning•2002

  • Ordinary magic

    Ann S Masten•American Psychologist•2001

  • Individualistic and Collectivistic Perspectives on Gender and the Cultural Context of Love and Intimacy

    Open Access•Karen K Dion, Kenneth L Dion•Journal of Social Issues•1993

  • The Construct of Resilience

    Open Access•Suniya S Luthar, Dante Cicchetti et al.•Child Development•2000

  • Moments of Truth

    Premilla D’cruz•Journal of Comparative Family…•2003

  • The Production of Authoritative Knowledge in American Prenatal Care

    Open Access•Carole H Browner, Nancy Pre et al.•Medical Anthropology Quarterly•1996

  • Women Come Here on Their Own When They Need To

    Open Access•Paola M Sesia, Paola Sesia•Medical Anthropology Quarterly•1996

Highly citedNo

Tools

Open DOISci-Hub
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae