Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME)
Prioritisation through card ranking
Bibliographic Data
| ID | 15296851 |
|---|---|
| Authors | Roxanne Parslow (0000-0002-3612-7121, University of Bristol, corresponding author), Roxanne M Parslow, Nina Anderson (0000-0001-8511-2500, University of Bristol), Danielle Byrne (0000-0002-8168-2159, University of Bristol), Kirstie Haywood (0000-0002-5405-187X, University of Warwick), A Shaw (0000-0002-5907-4608, University of Bristol), Esther Crawley (0000-0002-2521-0747, University of Bristol) |
| Year | 2020 |
| Volume | 29 |
| Issue | 5 |
| Pages | 1169-1181 |
| Publication date | 2020-01-06 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Quality of Life Research (JOURNAL) |
| Journal identifiers | ISSN: 0962-9343 • E-ISSN: 1573-2649 |
| Publisher | Springer Science+Business Media (PUBLISHER • DE) |
| DOI | 10.1007/s11136-019-02399-z |
| PMID | 31907870 |
| OpenAlex | W2998657386 |
| Language | EN |
| References cited | 59 |
An interactive card ranking exercise worked well for adolescents aged 12-17 to elicit the most important outcomes to them and explore each domain in further detail. We developed a final conceptual framework of HRQoL that forms the basis of a new paediatric patient-reported outcome measure (PROM) in CFS/ME
Anxiety · Chronic fatigue syndrome · Conceptual framework · Mood · Physical therapy · Psychiatry · Qualitative research · Quality of life (healthcare · Thematic analysis · Cerebral Palsy and Movement Disorders · Clinical Psychology · Fibromyalgia and Chronic Fatigue Syndrome Research · Medicine · Nursing · Psychology · Resilience and Mental Health
Interviewing the Ill
Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation
Linking Clinical Variables With Health-Related Quality of Life
The Status of Health Assessment 1994
Generic Health-Related Quality-of-Life Assessment in Children and Adolescents
GRIPP2 reporting checklists
Parent proxy-report of their children's health-related quality of life
Assessment of Health-Related Quality of Life in Children
The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease
Qualitative research in health care
A Purposeful Approach to the Constant Comparative Method in the Analysis of Qualitative Interviews
Qualitative data analysis for applied policy research
Handbook of Interview Research
A qualitative study to develop a patient-reported outcome for dysmenorrhea
Qualitative research and content validity
Content validity in the PROMIS social-health domain
Methodological aspects of collecting data from children
Grounded Theory Research
Grounded theory research
How Many Interviews Are Enough
| Highly cited | No |
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