Evaluation of the Families SHARE workbook

An educational tool outlining disease risk and healthy guidelines to reduce risk of heart disease, diabetes, breast cancer and colorectal cancer

Bibliographic Data

ID15364796
AuthorsLaura M Koehly (0000-0003-4588-2898, National Institutes of Health, corresponding author), Bronwyn Morris (0000-0002-2237-6987, National Human Genome Research Institute), Bronwyn A Morris, Kaley Skapinsky (National Institutes of Health), Andrea Goergen (National Institutes of Health), Amanda Ludden (National Institutes of Health)
Year2015
Volume15
Issue1
Publication date2015-11-13
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueBMC Public Health (JOURNAL)
Journal identifiersISSN: 1471-2458 • E-ISSN: 1471-2458
PublisherBioMed Central (PUBLISHER • GB)
DOI10.1186/s12889-015-2483-x
OpenAlexW2096727143
LanguageEN
Citations received6
References cited92

Common diseases such as heart disease, diabetes, and cancer are etiologically complex with multiple risk factors (e.g., environment, genetic, lifestyle). These risk factors tend to cluster in families, making families an important social context for intervention and lifestyle-focused disease prevention. The Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook was designed as an educational tool outlining family health history based risk of heart disease, type 2 diabetes, breast cancer, and colorectal cancer. The current paper describes the steps taken to develop and evaluate the workbook employing a user-centered design approach. The workbook was developed in four steps, culminating in an evaluation focusing on understanding and usability of the tool. The evaluation was based on two Phases of data collected from a sample of mothers of young children in the Washington, D.C., area. A baseline assessment and follow-up approximately two weeks after receipt of the workbook were conducted, as well as focus groups with participants. The design of the workbook was refined in response to participant feedback from the first evaluation Phase and subsequently re-evaluated with a new sample. After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale). In addition, 100 % of users were able to use the algorithm to assess their disease risk and over 60 % used the algorithm to assess family members’ disease risk. At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well. The Families SHARE workbook was developed and evaluated resulting in a family health history tool that is both understandable and usable by key stakeholders. This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors. ClinicalTrials.gov, NCT01498276 . Registered 21 December 2011

Breast cancer · Cancer · Context (archaeology · Disease · Family history · Family medicine · Workbook · Health Promotion and Cardiovascular Prevention · Medicine · Nutrition, Genetics, and Disease · Obesity, Physical Activity, Diet · Gerontology · Internal Medicine

Tools

Open DOISci-HubOpen Access