I think the parent should be there because no one was born alone”
Kenyan adolescents’ perspectives on parental involvement in HIV research
Bibliographic Data
| ID | 15456902 |
|---|---|
| Authors | Allison K Groves (0000-0003-4520-3963, Drexel University, corresponding author), Denise Dion Hallfors (0000-0003-0047-1454, Pacific Institute For Research and Evaluation), Bonita J Iritani (0000-0001-6941-6993, Pacific Institute For Research and Evaluation), Rennie (0000-0003-3844-972X, University of North Carolina at Chapel Hill), Frederick Odongo (0000-0003-3793-1725, Kenya Medical Research Institute), Daniel Kwaro (0000-0002-0929-8072, Kenya Medical Research Institute), Amek Nyaguara (0000-0002-7865-8756, Kenya Medical Research Institute), Winnie K Luseno (0000-0002-0611-7985, Pacific Institute For Research and Evaluation) |
| Year | 2018 |
| Volume | 17 |
| Issue | 3 |
| Pages | 227-239 |
| Publication date | 2018-09-28 |
| Open Access | No |
| Type | ARTICLE |
| Venue | African Journal of AIDS Research (JOURNAL) |
| Journal identifiers | ISSN: 1608-5906 • E-ISSN: 1727-9445 |
| Publisher | Taylor & Francis (PUBLISHER • GB) |
| DOI | 10.2989/16085906.2018.1504805 |
| PMID | 30319046 |
| OpenAlex | W2896257490 |
| Language | EN |
| Citations received | 7 |
| References cited | 30 |
Despite a pressing need for adolescent HIV research in sub-Saharan Africa, ethical guidance for conducting research among minor adolescents is lacking. One ethical issue is the degree to which parents should be involved in the research process. The existing discourse is predominantly speculative and focuses on negative consequences of parental involvement. We use empirical data to describe the perspectives of Kenyan adolescents on parental involvement in consent and disclosure of HIV test results within a research study context. We conducted two rounds of focus group discussions with 40 adolescents in western Kenya to ask about minor adolescent participation in HIV research. We analysed data using codes and matrices. Kenyan adolescents were largely in favour of parental involvement during the research process. Half felt adolescent minors should solicit parental consent to participate, and nearly all said parents should learn the HIV test results of adolescent minors in order to provide necessary support. From their perspective, involvement of parents in research extends beyond obtaining their consent to providing essential support for youth, regardless of HIV status, both during and beyond the research study. Ethical guidelines that prioritise adolescent autonomy in research must consider reasons to involve parents considered important by adolescents themselves, particularly in low-resource settings
Alternative medicine · Autonomy · Context (archaeology · Developmental psychology · Family medicine · Focus group · Informed consent · Kenya · Minor (academic · Parental consent · Political science · Sociology · Adolescent Sexual and Reproductive Health · Ethics in Clinical Research · HIV/AIDS Research and Interventions · Law · Medicine · Psychology
The ethical‐legal requirements for adolescent self‐consent to research in sub‐Saharan Africa
‘You are not alone’ - The role of social relationships in engagement in care for adolescents living with perinatally acquired HIV in Western Kenya
Experiences along the HIV care continuum
Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries
Consent Challenges and Psychosocial Distress in the Scale-up of Voluntary Medical Male Circumcision Among Adolescents in Western Kenya
Does Venue of HIV Testing and Results Disclosure in the Context of a Research Study Affect Adolescent Health and Behavior? Results from a Study in Western Kenya
If the mother does not know, there is no way she can tell the adolescent to go for drugs”
Parent-adolescent communication and sexual risk behaviors among African American adolescent females
Memoing in qualitative research
Ethical Approaches to Adolescent Participation in Sexual Health Research
Epidemiology of HIV and Aids Among Adolescents
Changes to the law on consent in South Africa
“It is all about the fear of being discriminated [against]…the person suffering from HIV will not be accepted”
Domestic Violence Among Adolescents in HIV Prevention Research in Tanzania
Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth
Written Parental Consent in School-Based HIV/Aids Prevention Research
Ethical and Regulatory Issues with Conducting Sexuality Research with LGBT Adolescents
| Citations per year | 0.78 |
|---|---|
| Citation span | 2017 - 2023 (7) |
| Highly cited | No |