Grief Experiences in Family Caregivers of Children with Autism Spectrum Disorder (ASD)
Bibliographic Data
| ID | 15512481 |
|---|---|
| Authors | Jorge Bravo-Benítez (0000-0002-1648-392X, Universidad de Granada), María Nieves Pérez‐Marfil (0000-0001-6329-8770, Universidad de Granada, corresponding author), Belén Román-Alegre (0000-0002-1085-091X, Universidad de Cádiz), Francisco Cruz‐Quintana (0000-0001-9805-5939, Universidad de Granada) |
| Year | 2019 |
| Volume | 16 |
| Issue | 23 |
| Pages | 4821-4821 |
| Publication date | 2019-11-30 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Environmental Research and Public Health (JOURNAL) |
| Journal identifiers | ISSN: 1661-7827 • E-ISSN: 1660-4601 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/ijerph16234821 |
| OpenAlex | W2990128112 |
| Language | EN |
| Citations received | 9 |
| References cited | 39 |
The main objective of this study was to analyse the experience of grief and feelings of loss in family caregivers of children diagnosed with autism spectrum disorder (ASD), as well as the perceived overload from taking on the primary caregiver role. Twenty family caregivers of children with ASD participated. The family members were assessed using an ad-hoc semi-structured interview that addressed the families’ reactions to the diagnosis, implications for daily functioning, and concerns for the immediate and long-term future of their relatives with ASD. The results indicate that family caregivers of children with ASD endure intense and continuous sorrow and grief due to the impact that having and caring for a child with these characteristics has on all aspects of their lives. These data highlight the importance of creating support and intervention programmes and services focused on the feelings and manifestations of ambiguous grief that occur in these family members, in order to improve their well-being and quality of life and reduce caregiver role overload
Autism · Autism spectrum disorder · Developmental psychology · Grief · Psychiatry · Autism Spectrum Disorder Research · Child Nutrition and Feeding Issues · Clinical Psychology · Family and Disability Support Research · Psychology
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| Unique citing works | 9 |
|---|---|
| Citations per year | 1,8 |
| Citation span | 2021 - 2026 (6) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 9 |