Digital Health Literacy and Person-Centred Care
Co-Creation of a Massive Open Online Course for Women with Breast Cancer
Bibliographic Data
The diagnosis of breast cancer (BC) can make the affected person vulnerable to suffering the possible consequences of the use of low-quality health information. Massive open online courses (MOOCs) may be a useful and efficient resource to improve digital health literacy and person-centred care in this population. The aim of this study is to co-create a MOOC for women with BC, using a modified design approach based on patients' experience. Co-creation was divided into three sequential phases: exploratory, development and evaluation. Seventeen women in any stage of BC and two healthcare professionals participated. In the exploratory phase, a patient journey map was carried out and empowerment needs related to emotional management strategies and self-care guidelines were identified, as well as information needs related to understanding medical terminology. In the development phase, participants designed the structure and contents of the MOOC through a Moodle platform. A MOOC with five units was developed. In the evaluation phase, participants strongly agreed that their participation was useful for the MOOC's development and participating in the co-creation process made the content more relevant to them (experience in the co-creation); most of the participants positively evaluated the content or interface of the MOOC (acceptability pilot). Educational interventions designed by women with BC is a viable strategy to generate higher-quality, useful resources for this population
Digital health · Empowerment · Health care · Health literacy · Literacy · Medical education · Pedagogy · Population · Psychological intervention · Resource (disambiguation · Terminology · Computer Science · Health Literacy and Information Accessibility · Medicine · Mobile Health and mHealth Applications · Nursing · Psychology · Social Media in Health Education
A aprendizagem criativa como ferramenta para empoderamento e educação de pacientes sobre câncer de mama
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| Unique citing works | 3 |
|---|---|
| Citations per year | 1,5 |
| Citation span | 2024 - 2025 (2) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 3 |