Pediatric Patients Receiving Specialized Palliative Home Care According to German Law
A Prospective Multicenter Cohort Study
Bibliographic Data
| ID | 15719022 |
|---|---|
| Authors | Silke Nolte-Buchholtz (University Hospital Carl Gustav Carus, corresponding author), Boris Zernikow (0000-0001-5875-3775, Witten/Herdecke University), Julia Wager (0000-0003-4493-6356, German Center for Pediatric and Adolescent Rheumatology) |
| Year | 2018 |
| Volume | 5 |
| Issue | 6 |
| Pages | 66-66 |
| Publication date | 2018-05-31 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Children (JOURNAL) |
| Journal identifiers | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Publisher | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children5060066 |
| PMID | 29857504 |
| OpenAlex | W2807409366 |
| Language | EN |
| Citations received | 6 |
| References cited | 10 |
In Germany, every child with a life-limiting condition suffering from symptoms that cannot sufficiently be controlled is eligible by law for specialized pediatric palliative home care (SPPHC). It is the aim of this study to describe the demographic and clinical characteristics of children referred to SPPHC and to compare patients with cancer and non-cancer conditions. The prospective multicenter study includes data on 75 children (median age 7.7 years, 50.7% male). The majority had non-cancer conditions (72%). The most common symptoms were cognitive impairment, somatic pain, impairment in communication or swallowing difficulties. Swallowing difficulties, seizures, and spasticity occurred significantly more often in non-cancer patients ( p p p p < 0.001). Tracheostomy tubes (9.3%) or ventilation (14.7%) were only used in non-cancer patients. In conclusion, patients referred to SPPHC are a diverse cohort with complex conditions including a large range of neurologically originating symptoms. The care of pediatric palliative care patients with cancer is different to the care of non-cancer patients
Cohort · Family medicine · German · Multicenter study · Palliative care · Prospective cohort study · Child and Adolescent Health · Childhood Cancer Survivors' Quality of Life · Health and Medical Studies · History · Medicine · Nursing · Internal Medicine
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Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care
Telehealth Needs and Concerns of Stakeholders in Pediatric Palliative Home Care
| Citations per year | 1.2 |
|---|---|
| Citation span | 2021 - 2024 (4) |
| Highly cited | No |