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The Perception of Disability Among Mothers Living With a Child With Cerebral Palsy in Saudi Arabia

Bibliographic Data

ID15736852
AuthorsSanaa Mohamed Madi (King Fahd Medical City, corresponding author), Anne Mandy (0000-0003-0832-9153, University of Brighton), Kay Aranda (0000-0003-4472-2980, University of Brighton)
Year2019
Volume6
Pages2333393619844096-2333393619844096
Publication date2019-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueGlobal Qualitative Nursing Research (JOURNAL)
Journal identifiersISSN: 2333-3936 • E-ISSN: 2333-3936
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/2333393619844096
PMID31065572
OpenAlexW2943643886
LanguageEN
Citations received10
References cited46

The purpose of this study was to explore the perceptions of disability among Saudi mothers and to understand the implication of the meaning for the mothers of children with disability. A critical ethnographic approach was employed using focus groups and follow-up interviews with the mothers. Three primary themes were identified that specifically influenced and affected the mothers' experiences: (a) culture and religion, (b) motherhood and disability, and (c) community stigma and discrimination. The study reveals much-needed knowledge and sheds light on a topic, the details of which are rarely available in research literature from the Middle East. The findings further endorse the need for clinicians to listen to the mothers to consider their beliefs and the impact of these beliefs on their experiences. This, in turn, may provide a valuable conceptual lens for health care practitioners to use the family-centered model when working with cerebral palsy children

Cerebral palsy · Developmental psychology · Ethnography · Focus group · Meaning (existential · Perception · Psychiatry · Psychotherapist · Qualitative research · Sociology · Stigma (botany · Cerebral Palsy and Movement Disorders · Disability Rights and Representation · Family and Disability Support Research · Medicine · Psychology

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    Jenny L Davis, B Manago•Stigma and Health•2015

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Unique citing works10
Citations per year2,5
Citation span2022 - 2026 (5)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 8

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