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Understanding the State of Research Evidence Involving Parents of Children with Cerebral Palsy in the Arab Contexts

A Scoping Review

Bibliographic Data

ID22137802
AuthorsAshwaq Alqahtani (0009-0009-4884-2251, Qassim University), Sumaya Mehelay (0009-0007-0660-9123, Queen's University), Siona Phadke (0009-0002-2552-9309, Queen's University), Danielle Macdonald (0000-0002-9235-7108, Queen's University), Heather M Aldersey (0000-0001-7763-5934, Queen's University), Heather Aldersey, Amanda Ross-White (0000-0003-4737-0968), Afolasade Fakolade (0000-0003-3405-5782, Providence Health Care)
Year2024
Volume9
Issue06
Pages181-195
Publication date2024-06-13
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSaudi Journal of Humanities and Social Sciences (JOURNAL)
Journal identifiersISSN: 2415-6248 • E-ISSN: 2415-6256
PublisherSASPR Edu International Pvt. Ltd (PUBLISHER)
DOI10.36348/sjhss.2024.v09i06.002
OpenAlexW4399917431
LanguageEN
Citations received1
References cited3

Raising a child with cerebral palsy (CP) can be both rewarding and challenging. Family caregivers, typically parents, play an important role in supporting and caring for children with CP. Research on CP family caregiving is growing, but Arab parental caregiving appears absent from this body of work. The objective was to map the scope of the existing literature about parents of children with CP in Arab contexts to identify gaps in knowledge and guide future research. This scoping review was conducted following the JBI methodology. Five major health-related databases (MEDLINE, CINAHL, EMBASE, Global Health, APA Psycinfo) and two general search engines and directories (Google Scholar and Ulrichsweb) were searched. We selected peer-reviewed studies that included parents of children with CP in Arab countries, regardless of publication date or study design. The search included literature published in Arabic and English. We identified ten studies that met our criteria and were published between 2013 and 2022. Across all studies, mothers were the most reported primary caregivers. Four studies reported tasks performed by parental caregivers, including but not limited to transferring, dressing, transportation, and feeding. The included studies explored the financial, social, and information needs of the parents. Studies focused primarily on caregiver burden or other negative consequences of caregiving. Parents in one study only reported increased resilience as a positive consequence. In addition, no studies included interventions. Research on parental caregiving in the Arab context is limited. Further studies are necessary to explore the unique needs and experiences of Arab CP caregivers

Cerebral palsy · Developmental psychology · Psychiatry · Cerebral Palsy and Movement Disorders · Computer Science · Family and Disability Support Research · Medicine · Psychology

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    Open Access•Jessie McGowan, Margaret Sampson et al.•Journal of Clinical Epidemiology•2016

  • The Perception of Disability Among Mothers Living With a Child With Cerebral Palsy in Saudi Arabia

    Open Access•Sanaa Mohamed Madi, Anne Mandy et al.•Global Qualitative Nursing Research•2019

  • Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China

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Unique citing works1
Citations per year1
Citation span2025 - 2025 (1)
Citation velocityrecent
Highly citedNo

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