When Does Therapeutic Misconception Affect Surrogates' or Subjects' Decision Making about Whether to Participate in Dementia Research

Bibliographic Data

ID15745213
AuthorsLaura B Dunn (0000-0001-5669-6244, Stanford Medicine, corresponding author), BARTON W PALMER (0000-0002-7618-3144, VA San Diego Healthcare System)
Year2017
Volume19
Issue7
Pages678-685
Publication date2017-07-01
Open AccessYes
TypeARTICLE
VenueThe AMA Journal of Ethic (JOURNAL)
Journal identifiersISSN: 2376-6980 • E-ISSN: 2376-6980
PublisherAmerican Medical Association (PUBLISHER • US)
DOI10.1001/journalofethics.2017.19.7.nlit1-1707
PMID28813240
OpenAlexW2725958391
LanguageEN
Citations received2
References cited7

Therapeutic misconception" (TM) refers to inappropriate assumptions and beliefs on the part of research participants regarding key distinctions between the purpose, methods, intended benefits, and potential disadvantages of research compared to those of clinical care. Despite an extensive literature describing TM across varied types of research and populations, minimal work has addressed TM in the context of dementia research. This is a serious gap, for several reasons: people with dementia are at significant risk of diminished capacity; surrogate decision makers are typically asked to provide consent on behalf of the person with dementia; and available treatments for dementia are quite limited. More research is needed on the prevalence, nature, and impact of TM in the context of clinical dementia research

Affect (linguistics · Alternative medicine · Context (archaeology · Dementia · Disease · Informed consent · Ethics in Clinical Research · Ethics in medical practice · Health Systems, Economic Evaluations, Quality of Life · Medicine · Psychology · Gerontology

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