Data saves lives’
Ideational-material drivers of health data journeys in the UK
Bibliographic Data
| ID | 16899245 |
|---|---|
| Authors | Itzelle Medina Perea (0000-0003-1702-1484, University of Sheffield, corresponding author), Jo Bates (0000-0001-7266-8470, University of Sheffield), Andrew Cox (0000-0001-5396-6763, University of Sheffield) |
| Year | 2024 |
| Volume | 11 |
| Issue | 4 |
| Publication date | 2024-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Big Data & Society (JOURNAL) |
| Journal identifiers | ISSN: 2053-9517 • E-ISSN: 2053-9517 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/20539517241296056 |
| OpenAlex | W4404119116 |
| Language | EN |
| Citations received | 2 |
| References cited | 30 |
In this paper, we bring together the concepts of data valences and data journeys to examine how ideational and material factors work together to shape the movement of health data from the UK healthcare sector to universities for reuse in research. Specifically, we focus on the interaction of university-based researchers’ constructs about data with the material conditions of health data circulation in the UK and how these dynamics drive greater circulation of health data through the data sharing infrastructure. Building on our empirical research, we identify four data valences or expectations about data present in the discourses of university-based researchers – vanguard, discovery, truthiness and actionability – and three material factors – investment in data, infrastructure and labour. We argue that the interaction of these factors has created a favourable environment for making data flow from the healthcare sector into the hands of university-based researchers. This work contributes to a better understanding of why health data reuse practices are expanding and being sustained, and it challenges previous health data reuse research that treats the drivers shaping data flows as self-evident or already determined
Data science · Sociology · Computer Science · Data Analysis and Archiving · Ethics in Clinical Research · Public Health Policies and Education
Political Analysis
Big data
Popular Culture and New Media
‘Not the Real Me’
Containing the Atom
Using thematic analysis in psychology
Data as promise
Conceptualizations of Big Data and their epistemological claims in healthcare
Understanding the promises and premises of online health platforms
Data journeys
Institutions, infrastructures, and data friction - Reforming secondary use of health data in Finland
Opening the black box of data-based school monitoring
Resisting big data exploitations in public healthcare
| Unique citing works | 2 |
|---|---|
| Citations per year | 2 |
| Citation span | 2026 - 2026 (1) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 1 |