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Quality of life among Ghanaian adolescents living with perinatally acquired HIV

A mixed methods study

Bibliographic Data

ID19438768
AuthorsAnthony Enimil (0000-0001-6521-3400, Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi, Ghana, corresponding author), Nicole R Nugent (0000-0001-8756-5618, Brown University), Nicole Nugent (Department of Psychiatry, Rhode Island Hospital, Providence, RI, USA), Christian Amoah (0000-0002-8104-9089, Psychiatry Department, Komfo Anokye Teaching Hospital, Kumasi, Ghana), Betty Norman (0000-0002-4075-5972, Directorate of Medicine, Komfo Anokye Teaching Hospital, Kumasi, Ghana), Sampson Antwi (0000-0003-0957-6105, Directorate of Child Health, Komfo Anokye Teaching Hospital, Kumasi, Ghana), Joseph Ocran (0000-0003-3322-9840, Department of Sociology, University of Ghana, Accra, Ghana), Awewura Kwara (0000-0002-1118-8331, Providence College), David H Barker (0000-0001-9551-647X, Department of Psychiatry, Rhode Island Hospital, Providence, RI, USA)
Year2016
Volume28
Issue4
Pages460-464
Publication date2016-04-02
Open AccessNo
TypeARTICLE
VenueAIDS Care (JOURNAL)
Journal identifiersISSN: 0954-0121 • E-ISSN: 1360-0451
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09540121.2015.1114997
PMID26643735
OpenAlexW2191067034
LanguageEN
Citations received12
References cited20

In Sub-Saharan Africa, increasing numbers of children with perinatally acquired HIV (PAHIV) are living into adolescence. These adolescents face numerous unique challenges such as parent illness/death and years of medication use. Optimizing care for these youth requires an understanding of the factors that contribute to physical health, psychological well-being, social relationships, and quality of life (QOL). This mixed methods study collected quantitative questionnaire data from 40 Ghanaian adolescents with PAHIV (50% female, 12-19 years old) who received care through an adolescent HIV clinic in Kumasi, Ghana. The study also presents results from qualitative interviews conducted with 20 adolescents. Results from quantitative analyses suggested that a significant number of participants were not virally suppressed (67%) and participants reported barriers to treatment adherence, limited social support, concerns about disclosure and HIV-related stigma, limited resources, and lower than expected QOL. Salient themes from the qualitative analyses included limited understanding of how HIV is transmitted, the interplay between food insecurity and treatment adherence and the need for developing safe relationships through which adolescents can discuss their illness without fear of accidental disclosure of their HIV status

Accidental · Family medicine · Psychiatry · Qualitative property · Qualitative research · Social stigma · Adolescent and Pediatric Healthcare · Adolescent Sexual and Reproductive Health · Clinical Psychology · HIV/AIDS Research and Interventions · Medicine · Nursing · Psychology · Gerontology

  • Systematic review of functional outcomes in youth living with HIV

    Open Access•Mishali Bhattacharjee, Nicole Phillips et al.•AIDS Care•2026

  • The secret life of young adolescents living with HIV in northern Mozambique - a mixed methods study

    Open Access•Joana Falcao, Allison Zerbe et al.•BMC Public Health•2021

  • Strategies to Overcome Implementation Challenges of Multiple Family Group Therapy for Adolescents Living With HIV in Ghana

    Open Access•Dorothy Serwaa Boakye, Samuel Adjorlolo et al.•Health & Social Care in the…•2026

  • A Phenomenological Account of HIV Disclosure Experiences of Children and Adolescents from Northern and Southern Ghana

    Open Access•Seth Christopher Yaw Appiah, Inge Kroidl et al.•International Journal of…•2019

  • Psychosocial predictors of quality of life among South Africa adolescents receiving antiretroviral therapy

    Open Access•Ashraf Kagee, Bronwyne J Coetzee et al.•Quality of Life Research•2018

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    Open Access•Gloria Wowolo, Wangnan Cao et al.•Frontiers in Public Health•2022

  • Understanding depression, anxiety and stress in young people living with HIV in Ghana

    John‐Paul Omuojine, Charles Martyn‐Dickens et al.•African Journal of AIDS Research•2024

  • Consent Challenges and Psychosocial Distress in the Scale-up of Voluntary Medical Male Circumcision Among Adolescents in Western Kenya

    Open Access•Winnie K Luseno, Samuel H Field et al.•AIDS and Behavior•2019

  • Pathways to Depression and Poor Quality of Life Among Adolescents in Western Kenya

    Open Access•Winnie K Luseno, Samuel H Field et al.•AIDS and Behavior•2020

  • Cultural Adaption, Translation, Preliminary Reliability and Validity of Key Psychological and Behavioural Measures for 18 to 25 Year-Olds Living with HIV in Uganda

    Open Access•Michael Evangeli, Caroline Foster et al.•AIDS and Behavior•2023

  • Health-related quality of life of perinatally HIV-infected young people

    Open Access•Anne Marleen ter Haar, Malon Van den Hof et al.•AIDS Care•2022

  • The centrality of disclosure decisions to the illness experience for youth with chronic conditions

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  • Comparative validity of three screening questionnaires for DSM-IV depressive disorders and physicians? diagnoses

    Open Access•Bernd Löwe•Journal of Affective Disorders•2004

  • The Adolescent and Young Adult HIV Cascade of Care in the United States

    Brian C Zanoni, Kenneth H Mayer•AIDS Patient Care and STDs•2014

  • The sensitivity and specificity of the Major Depression Inventory, using the Present State Examination as the index of diagnostic validity

    Open Access•Per Bech, Niels Anton Rasmussen et al.•Journal of Affective Disorders•2001

  • Depression and Quality of Life in Older Persons

    Open Access•Heidi Sivertsen, Guro Hanevold Bjørkløf et al.•Dementia and Geriatric Cognitive…•2015

  • The internal and external validity of the Major Depression Inventory in measuring severity of depressive states

    Open Access•L R OLSEN, D V JENSEN et al.•Psychological Medicine•2003

  • Perinatally acquired HIV infection in adolescents from sub-Saharan Africa

    Open Access•Elizabeth D Lowenthal, Sabrina Bakeera-Kitaka et al.•The Lancet Infectious Diseases•2014

  • Positive futures

    Ruoying Li, R J Li et al.•AIDS Care•2010

  • The World Health Organization's WHOQOL-BREF quality of life assessment

    Open Access•Suzanne M Skevington, Mohamed Lotfy et al.•Quality of Life Research•2004

  • The WHO quality of life assessment instrument (WHOQOL-Bref)

    Open Access•Shekhar Saxena, Dawn S Carlson et al.•Quality of Life Research•2001

  • HIV/Aids-related stigma in Kumasi, Ghana

    Open Access•Chijioke I Ulasi, Peter Preko et al.•Health & Place•2008

Citations per year1.5
Citation span2018 - 2026 (9)
Highly citedNo

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