Conceptualizing patient participation in psychiatry

A survey describing the voice of patients in outpatient care

Bibliographic Data

ID19506045
AuthorsRikard Wärdig (0000-0001-8919-3723, Department of Health, Medicine and Caring Sciences Linköping University Linköping Sweden), Fredrik Olofsson (Department of Psychiatry in Norrköping and Department of Biomedical and Clinical Sciences Linköping University Linköping Sweden), Ann Catrine Eldh (0000-0002-7737-169X, Department of Health, Medicine and Caring Sciences Linköping University Linköping Sweden, corresponding author)
Year2021
Volume24
Issue4
Pages1443-1449
Publication date2021-08-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13285
PMID34058044
OpenAlexW3165815456
LanguageEN
Citations received2
References cited56

BACKGROUND: While increasingly discussed in somatic care, the concept of patient participation remains unsettled in psychiatric care, potentially impeding person-centred experiences. OBJECTIVE: To describe outpatient psychiatric care patients' conceptualization of patient participation. DESIGN: An exploratory survey. SETTING AND PARTICIPANTS: Patients in four psychiatric outpatient care units. VARIABLES: Patients conceptualized patient participation by completing a semi-structured questionnaire, including optional attributes and free text. Data were analysed using statistics for ordinal data and content analysis for free text. RESULTS: In total, 137 patients (69% of potential respondents) completed the questionnaire. The discrete items were favoured for conceptualizing patient participation, indicating a primary connotation that participation means being listened to, being in a reciprocal dialogue, learning about one's health care and managing one's symptoms. Additional free-text responses acknowledged the attributes previously recognized, and provided supplementary notions, including that patient participation is about mutual respect and shared trust. DISCUSSION: What patient participation is and how it can be facilitated needs to be agreed in order to enable preference-based patient participation. Patients in outpatient psychiatric care conceptualize participation in terms of both sharing of and sharing in, including taking part in joint and solo activities, such as a reciprocal dialogue and managing symptoms by yourself. CONCLUSION: While being a patient in psychiatric care has been associated with a lack of voice, an increased understanding of patient participation enables person-centred care, with the benefits of collaboration, co-production and enhanced quality of care. PATIENT CONTRIBUTION: Patients provided their conceptualization of patient participation in accordance with their lived experience

Conceptualization · Health care · Outpatient clinic · Patient experience · Patient participation · Patient satisfaction · Preference · Reciprocal · Medicine · Mental Health and Patient Involvement · Mental Health and Psychiatry · Nursing · Patient-Provider Communication in Healthcare · Psychology

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