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Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement

The importance of advisory roles

Bibliographic Data

ID19506319
AuthorsJuliana Onwumere (0000-0001-7119-7451, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK, corresponding author), Anthony Gentle (King's College London), Rachel Obanubi (King's College London), Annette Davis (0000-0001-6930-5724, King's College London), Moffat Karuga (King's College London), Rubbia Ali (Department of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK), BeFine Study Team (University of Padua), Valentina Cardi (0000-0002-7763-7099, Department of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK)
Year2024
Volume27
Issue1
Pagese13892-e13892
Publication date2024-02-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13892
PMID37986702
OpenAlexW4388870173
LanguageEN
Citations received5
References cited30

INTRODUCTION: Ensuring adequate representation and the active, meaningful and visible involvement of groups likely to be most impacted by research findings and/or the lack of research inquiry are increasingly acknowledged. This is particularly relevant for Black racially minoritised groups who are less visible as research participants and in patient and public involvement and engagement (PPIE) roles. Our viewpoint article sought to discuss reflections and insights on their involvement experience, with particular attention to perceived barriers and enablers to PPIE involvement. METHODS: Qualitative data were collected as part of facilitated group discussions from nine Black racially minoritised experts-by-experience involved in a PPIE advisory group. Data were subjected to thematic analysis to identify key themes. CONCLUSION: Given the existence and importance of the direct links between research and service and treatment innovations in health and social care, ensuring that those from underrepresented Black racial communities are meaningfully and equitably supported to have roles in advising and influencing research programmes should be prioritised and an ongoing consideration for different stakeholders, including research funders, researchers, healthcare providers and community leaders/representatives. PATIENT OR PUBLIC CONTRIBUTION: This viewpoint article is a collaboration between lived experience stakeholders and researchers, comprising conceiving the original idea for the paper, its conceptualisation and data generation and the coproduction including editing of the manuscript

Mental health · Political science · Psychiatry · Public engagement · Public health · Public relations · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Nursing · Participatory Visual Research Methods · Psychology · Social Psychology

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Citations per year5
Citation span2025 - 2026 (2)
Highly citedNo

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