The development of PAT‐HD

A co‐designed tool to promote physical activity in people with Huntington’s disease

Bibliographic Data

ID19507514
AuthorsUna Jones (0000-0001-7156-8531, School of Healthcare Sciences Cardiff University Heath Park Cardiff UK, corresponding author), Katy Hamana (0000-0001-5213-253X, School of Healthcare Sciences Cardiff University Heath Park Cardiff UK), Fran O’Hara (Scarlet Design Tec Marina Terra Nova Way Penarth UK), Monica Busse (0000-0002-5331-5909, Centre for Trials Research Cardiff University Neuadd Merionnydd Heath Park Cardiff UK)
Year2021
Volume24
Issue2
Pages638-647
Publication date2021-04-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13210
PMID33580995
OpenAlexW3130584135
LanguageEN
Citations received1
References cited37

BACKGROUND: Huntington's disease (HD) is a genetic condition resulting in movement, behavioural and cognitive impairments. People with HD have low levels of physical activity which may be compounded by insufficient support from health-care professionals. OBJECTIVE: To evaluate the initial acceptability of a co-designed tool used within a HD clinic to promote physical activity. DESIGN: Co-design of a physical activity tool; acceptability evaluation. SETTING AND PARTICIPANTS: Co-design included people with HD and health-care professionals. Acceptability was evaluated in a HD clinic in the UK. MAIN VARIABLES STUDIED: A physical activity tool was co-designed and used within a HD clinic. MAIN OUTCOME MEASURE: Acceptability as assessed by semi-structured interviews with members of the HD clinic. RESULTS: Forty people visited the HD clinic; 19 were given physical activity advice. Themes around who, where and how promotion of physical activity could take place were identified; concepts of benefits and barriers were threads through each theme. DISCUSSION: We describe for the first time the co-design of a HD specific physical activity tool. Our associated acceptability study emphasizes the importance of individualized planning of physical activities in complex neurodegenerative conditions. Perceived barriers were time and lack of knowledge of local resources. CONCLUSIONS: A simple tool can support conversations about physical activity with people with HD and is an aid to individualized goal setting. Exploring the use of PAT-HD within a community setting and development of support systems for health-care professionals and support workers who are in regular contact with people with HD is required

Cognition · Disease · Huntington's disease · Physical activity · Physical therapy · Psychiatry · Amyotrophic Lateral Sclerosis Research · Genetic Neurodegenerative Diseases · Medicine · Nursing · Parkinson's Disease Mechanisms and Treatments · Psychology · Gerontology

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