Patient involvement in the development of a handbook for moderate rheumatoid arthritis
Bibliographic Data
BACKGROUND: Self-management is a key recommendation for people with rheumatoid arthritis (RA). Educational materials may support self-management, and increasingly patients are becoming involved with the development of these materials. The TITRATE trial compares the effectiveness of intensive management to standard care in patients with moderate RA across England. As part of the intensive management intervention, participants are given a handbook. AIM AND OBJECTIVES: The aim of this study was to develop a handbook to support the intensive management. The objectives were to: (i) involve patients in the identification of relevant information for inclusion in the TITRATE handbook; (ii) ensure the content of the handbook is acceptable and accessible. DESIGN: We held an audio-taped workshop with RA patients. The transcript of the workshop was analysed using thematic content analysis. RESULTS: Five main themes were identified as follows: 'rheumatoid arthritis treatment, perceptions of rheumatoid arthritis, the importance of individualized goals, benefits of self-management and the patient handbook'. Feedback from the workshop was incorporated into the handbook, and patients' anonymous testimonies were added. CONCLUSION: This study demonstrates that patient contribution to the development of educational material to support intensive management of RA is both feasible and valuable. A qualitative evaluation of the use and impact of the handbook with patients and practitioners is planned on completion of the TITRATE trial
Content analysis · Family medicine · Patient education · Physical therapy · Qualitative research · Rheumatoid arthritis · Sociology · Thematic analysis · Diabetes Management and Education · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Rheumatoid Arthritis Research and Therapies · Internal Medicine
Focus Group Methodology
Patient engagement in research
Experience-based design
Systematic review of involving patients in the planning and development of health care
Developing written information on osteoarthritis for patients
Member Checking
Using thematic analysis in psychology
Empowering Processes and Outcomes of Participation in Online Support Groups for Patients With Breast Cancer, Arthritis, or Fibromyalgia
| Unique citing works | 3 |
|---|---|
| Citations per year | 0.33 |
| Citation span | 2017 - 2022 (6) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 3 |