Patient engagement in research
A systematic review
Bibliographic Data
| ID | 23362148 |
|---|---|
| Authors | Juan Pablo Domecq (0000-0002-8540-9862), Gabriela Prutsky, Tarig Elraiyah, Zhen Wang (0000-0001-6729-2640), Mohammed Nabhan, Nathan Shippee, Juan Pablo Brito, Kasey Boehmer, Rim Hasan, Belal Firwana, Patricia Erwin, David Eton, Jeff Sloan, Víctor Montori, Noor Asi, Abd Moain Abu Dabrh (0000-0002-2481-483X), Mohammad Hassan Murad |
| Year | 2014 |
| Volume | 14 |
| Issue | 1 |
| Publication date | 2014-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | BMC Health Services Research (JOURNAL) |
| Journal identifiers | ISSN: 1472-6963 • E-ISSN: 1472-6963 |
| Publisher | Springer Science and Business Media LLC (PUBLISHER) |
| DOI | 10.1186/1472-6963-14-89 |
| PMID | 24568690 |
| PMCID | PMC3938901 |
| Language | EN |
| Citations received | 177 |
| References cited | 23 |
Traveling Out-of-State for First Trimester Medication Abortion
Patient and Public Involvement and Engagement in Pediatric Health Research
Embedding Consumer‐Led Research in a Comprehensive Cancer Centre Alliance
From barriers to bridges
Learning From Lived Experience
Bridging Lived and Expert Experience
Research co-design in health
Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety
GRIPP2 reporting checklists
Commercial influences on patient and public involvement
Harnessing citizen science in health promotion
A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy
Strengthening Clinician-Researchers’ Communication and Knowledge Translation Skills
Active involvement of children aged 11–12 years in the development of a healthy nutrition intervention – a qualitative evaluation from researchers’ and children’s perspectives
What makes patients engaged
Co-design of Guidance for Patient and Public Involvement in Psychedelic Research
Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (Upim-Check)
Digital Trends, Digital Literacy, and E-Health Engagement Predictors of Breast and Colorectal Cancer Survivors
Assessing Patient Experience and Attitude
Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers
Exploring Users’ Health Behavior Changes in Online Health Communities
Combating stigma in autism research through centering autistic voices
Beyond study participants
Involving community members in designing behavioural weight management programmes
Partnering with Family Organizations in Research
Establishing a peer advisory board in a mental health ethics research group – challenges, benefits, facilitators and lessons learned
Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
Enabling Transdisciplinary Collaboration
Methods and impact of engagement in research, from theory to practice and back again
Identifying Public Healthcare Priorities in Virtual Care for Older Adults
Building new roles and relationships in research
Public engagement with health data governance
The immaturity of patient engagement in value-based healthcare—A systematic review
Revisiting the hospital-issued gown in hospitalizations from a locus of control and patient-centered care perspectives
Intergenerational engagement with Asian residents in long-term care facilities
Measurable outcomes of consumer engagement in health research
Barriers to Participation of Beneficiaries in Healthcare Research Projects
Challenges and opportunities in coproduction
‘A commitment to Equality, Diversity and Inclusion’
Balancing Trade‐Offs in Patient and Public Involvement and Engagement in Rapid Evaluation
Navigating the Gap
‘Very little is done other than the odd reminder’…‘look after yourself’
The impact of patient and public involvement in health research versus healthcare
Talking Ethics Early in Health Data Public Private Partnerships
Re-examining interpersonal source credibility in collaboration with community
Engaging patients in identifying risk factors for ALS
Identifying research Participation effects through qualitative methods
Patient and public involvement (PPI) in prisons
My Opinion Matters Too! What Makes Patient Partners Feel Valued in Patient-Oriented Research? Learning From Patient Partners who Experience Barriers to Engagement in Healthcare and Research
Frameworks for supporting patient and public involvement in research
Design, Development and Evaluation of the Citizen Science Cancer Curriculum (CSCC)
Peer Support Provided by People with Intellectual and Developmental Disabilities
Children’s Involvement in Research—A Review and Comparison with Service User Involvement in Health and Social Care
Considering Material Culture in Assessing Assistive Devices
Developing a Regional Strategy for Older Adults Living With Frailty
Collaboration between Public Health and Schools
Co-designing an Integrated Health and Social Care Hub With and for Families Experiencing Adversity
IRB Oversight of Patient-Centered Outcomes Research
Ethics and Science in the Participatory Era
Identity boxes
Out of the laboratory and into the classroom
Whom to Engage in Patient‐Engaged Research? Reflection on Selection
Subtle voices, distant futures
Challenges to Engaging Women Veterans in Quality Improvement From Patient Care to Policy
Envisioning Women-Centered HIV Care
A novel way to engage youth in research
Sharing results with participants (and community) in malaria related research
Experiences of people with prediabetes in a self-compassion and physical activity intervention
Setting weights for fifteen CHNRI criteria at the global and regional level using public stakeholders
The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research
Towards Meaningful Consumer and Community Involvement in Health Research
‘No‐one has listened to anything I’ve got to say before’
Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment
Perspectives on public involvement in health research from Singapore
Through Their Eyes
Co‐Designing an Engagement Strategy to Include the Voices of a Minority Group in Assessing the Quality of Maternity and Neonatal Care
Refugee and migrants' involvement in participatory spaces in a US practice‐based research network study
Engaging youth in research planning, design and execution
Can patients contribute to enhancing the safety and effectiveness of test‐result follow‐up? Qualitative outcomes from a health consumer workshop
A digital advocate? Reactions of rural people who experience homelessness to the idea of recording clinical encounters
Reliability and Validity of the Arabic Translation of the Public and Patient Engagement Evaluation Tool
Priorities for methodological research on patient and public involvement in clinical trials
Stakeholder engagement in European brain research
A Proposal for Addressing Bioethical Concerns Along the 10‐Step Framework for Community Engagement
Public and Patient Involvement and Engagement in Clinical Trials
A framework for involving coproduction partners in research about young people with type 1 diabetes
A descriptive review on methods to prioritize outcomes in a health care context
Innovate Research
Engaging participants with research findings
User involvement in the making
‘It reshaped how I will do research’
Embedding lived experience into mental health academic research organizations
“About sixty per cent I want to do it”
Users' and researchers' construction of equity in research collaboration
What motivates patients and caregivers to engage in health research and how engagement affects their lives
Defining Patient and Public Involvement and Engagement Tasks in Health Data Research
Patient engagement in the process of planning and designing outpatient care improvements at the Veterans Administration Health‐care System
End‐user involvement in a systematic review of quantitative and qualitative research of non‐pharmacological interventions for attention deficit hyperactivity disorder delivered in school settings
My Wellbeing Journal
Multiple stakeholders' perspectives on patient and public involvement in community mental health services research
Enhancing transparency in reporting the synthesis of qualitative research
The impact of patient and public involvement on UK NHS health care
Rameses publication standards
Preferred Reporting Items for Systematic Reviews and Meta-Analyses
Consumer involvement in systematic reviews of comparative effectiveness research
Patients’ priorities concerning health research
Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy
Health researchers’ attitudes towards public involvement in health research
A model for community representation and participation in HIV prevention trials among women who engage in transactional sex in Africa
Storylines of research in diffusion of innovation
Involving Young Service Users as Co-Researchers
Evaluating meta-ethnography
| Unique citing works | 177 |
|---|---|
| Citations per year | 14,75 |
| Citation span | 2014 - 2026 (13) |
| Citation velocity | current |
| Highly cited | Yes |
| Citation types | Neutral: 171 |