Using PROMs during routine medical consultations

The perspectives of people with Parkinson’s disease and their health professionals

Bibliographic Data

ID19507778
AuthorsOlga C Damman (0000-0002-4482-5042, Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The Netherlands, corresponding author), Marjolein E A Verbiest (0000-0003-3731-5295, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare) Radboud University Medical Center Nijmegen The Netherlands), Suzanne I Vonk (Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The Netherlands), Henk W Berendse (0000-0002-9189-3662, Department of Neurology, Amsterdam Neuroscience, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The Netherlands), Bastiaan R Bloem (0000-0002-6371-3337, Department of Neurology, Donders Institute for Brain, Cognition and Behaviour Radboud University Medical Centre Nijmegen The Netherlands), Martine C de Bruijne (0000-0003-1838-1158, Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The Netherlands), Marjan J Meinders (0000-0001-6491-7035, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare) Radboud University Medical Center Nijmegen The Netherlands)
Year2019
Volume22
Issue5
Pages939-951
Publication date2019-10-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.12899
PMID31199574
OpenAlexW2949788847
LanguageEN
Citations received3
References cited46

BACKGROUND: The use of patient-reported outcomes measures (PROMs), such as quality of life or symptoms like pain or fatigue, is increasingly embraced within patient-centred care and shared decision making. OBJECTIVES: To investigate: (a) how patients and health professionals think about using PROMs during routine medical consultations; (b) for which purpose(s), patients and health professionals want to use PROMs during those consultations; and (c) how patients interpret PROMs information presented in various formats. People with Parkinson's disease and their health professionals served as case example. METHODS: We performed semi-structured interviews with patients (N = 13) and professionals (N = 7 neurologists; N = 7 physiotherapists). We also used a survey in which patients (N = 115) were shown six figures displaying different information types. Presentation formats of this information varied (line/bar graphs). Interpretation by patients, perceived usefulness of information, attitude towards using information during routine medical consultations and (hypothetical) decisions were assessed. FINDINGS: Patients and professionals were generally positive about using PROMs during medical consultations. Professionals stressed the opportunity to monitor changes in individual PROMs over time. Patients were primarily positive about aggregated PROMs to make treatment decisions. This information was also most often interpreted correctly, especially when presented through a line graph (90.1% correct). Professionals thought patients should take the initiative in discussing PROMs, whereas patients thought professionals should do so. CONCLUSION/DISCUSSION: When used in routine medical consultations, PROMs seem to have potential to support shared decision making and facilitate patient-professional communication. However, training seems needed for both patients and professionals to facilitate actual discussion and proper interpretation

Disease · Family medicine · Health care · Health professionals · Medical decision making · Pathology · Cancer survivorship and care · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient-Provider Communication in Healthcare · Psychology

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