Codesigning person‐centred quality indicators with diverse communities

A qualitative patient engagement study

Bibliographic Data

ID19508045
AuthorsKimberly Manalili (0000-0003-0826-7298, Department of Community Health Sciences University of Calgary Calgary Alberta Canada), Fartoon M Siad (Department of Community Health Sciences University of Calgary Calgary Alberta Canada), Marichu Antonio (ActionDignity Calgary Alberta Canada), Bonnie Lashewicz, Bonnie M Lashewicz (0000-0001-6476-8981, Department of Community Health Sciences University of Calgary Calgary Alberta Canada), Maria Santana (0000-0002-0202-5952, Department of Community Health Sciences University of Calgary Calgary Alberta Canada, corresponding author)
Year2022
Volume25
Issue5
Pages2188-2202
Publication date2022-10-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13388
PMID34854190
OpenAlexW3216760634
LanguageEN
Citations received5
References cited31

INTRODUCTION: Effective engagement of underrepresented communities in health research and policy remains a challenge due to barriers that hinder participation. Our study had two objectives: (1) identify themes of person-centred care (PCC) from perspectives of diverse patients/caregivers that would inform the development of person-centred quality indicators (PC-QIs) for evaluating the quality of PCC and initiatives to improve PCC and (2) explore innovative participatory approaches to engage ethnocultural communities in qualitative research. METHODS: Drawing on participatory action research methods, we partnered with a community-based organization to train six 'Community Brokers' from the Chinese, Filipino, South Asian, Latino-Hispanic, East African and Syrian communities, who were engaged throughout the study. We also partnered with the provincial health organization to engage their Patient and Family Advisory, who represented further aspects of diversity. We conducted focus group discussions with patients/caregivers to obtain their perspectives on their values, preferences and needs regarding PCC. We identified themes through our study and engaged provincial stakeholders to prioritize these themes for informing the development of PC-QIs and codesign initiatives for improving PCC. RESULTS: Eight focus groups were conducted with 66 diverse participants. Ethnocultural communities highlighted themes related to access and cost of care, language barriers and culture, while the Patient and Family Advisory emphasized patient and caregiver engagement. Together with provincial stakeholders, initiatives were identified to improve PCC, such as codesigning innovative models of training and evaluation of healthcare providers. CONCLUSION: Incorporating patient and community voices requires addressing issues related to equity and understanding barriers to effective and meaningful engagement. PATIENT OR PUBLIC CONTRIBUTION: Patient and public engagement was central to our research study. This included partnership with a community-based organization, with a broad network of ethnocultural communities, as well as the provincial health service delivery organization, who both facilitated the ongoing engagement of diverse patients/caregiver communities throughout our study including designing the study, recruiting participants, collecting and organizing data, interpreting findings and mobilizing knowledge. Drawing from participatory action research methods, patients and the public were involved in the codesign of the PC-QIs and initiatives to improve PCC in the province based on the findings from our study

Citizen journalism · Community engagement · Community-based participatory research · Focus group · Health care · Health equity · Medical education · Participatory action research · Political science · Public health · Public relations · Qualitative research · Sociology · Diabetes Management and Education · Medicine · Mental Health and Patient Involvement · Nursing · Patient-Provider Communication in Healthcare · Psychology