Alignment of patient‐centredness definitions with real‐life patient and clinician experiences
A qualitative study
Bibliographic Data
INTRODUCTION: Patient-centred care (PCC) has come to the forefront for many institutions, funding agencies and clinicians, and is integrated into care. Does a disconnect in understanding still exist between patients, healthcare organizations and clinicians in what PCC means and how outstanding issues might be addressed? METHODS: We conducted interviews and focus groups with self-reported chronic care patients and clinicians providing care to these patients exploring PCC experiences, expectations and practices. These data were initially analysed using inductive thematic analysis. This paper reports on the findings of a secondary analysis examining the alignment between patients and clinicians on five key predetermined dimensions of PCC. RESULTS: Eighteen patients participated, representing a range of chronic conditions. Thirty-eight clinicians participated. One thousand and three hundred patient and 1800 clinician codes were identified and grouped into 5 main topics with 140 unique themes (patients) and 9 main topics with 54 unique themes (clinicians). A total of 166 quotes (patient = 93, clinician = 73) were identified for this PCC definition alignment analysis. Partial or complete alignment of patient and clinician perspectives was seen on most dimensions. Key disconnects were observed in patient involvement, patient empowerment and clinician-patient communication. Only 18% of patients reported experiencing patient-centred communication, whereas 57% of clinicians reported using patient-focused communication approaches. CONCLUSION: Overall, study patients and clinicians endorse that many PCC elements occur. This study highlights key differences between patients and clinicians, suggesting persistent challenges. Clinician participants relayed their PCC approaches of informing and educating patients; however, patients often perceive these approaches as didactic, role-diminishing and noncollaborative. Collaborative approaches, such as shared decision-making, hold promise to bridge persistent PCC gaps and should be integrated into medical education programmes. PATIENT OR PUBLIC CONTRIBUTION: This project was conceived and executed with a co-design approach wherein patients with chronic conditions who are trained in research (i.e., see descriptions of Patient and Community Engagement Research in the text) were involved in all stages of the research project alongside other researchers on the project team. Healthcare providers were involved as participants and as principal investigators in the project
Empowerment · Family medicine · Focus group · Health care · Patient Empowerment · Patient experience · Patient participation · Patient satisfaction · Qualitative research · Thematic analysis · Medicine · Mental Health and Patient Involvement · Nursing · Patient Satisfaction in Healthcare · Patient-Provider Communication in Healthcare
Improving Primary Care for Patients With Chronic Illness
Improving Primary Care for Patients With Chronic Illness
Decision aids for people facing health treatment or screening decisions
Systematic Review of the Effects of Shared Decision-Making on Patient Satisfaction, Treatment Adherence and Health Status
An Integrative Model of Patient-Centeredness – A Systematic Review and Concept Analysis
Where Is the Evidence? A Systematic Review of Shared Decision Making and Patient Outcomes
Barriers and facilitators to implementing shared decision-making in clinical practice
Shared Decision Making
Alignment of patient‐centredness definitions with real‐life patient and clinician experiences
Building new roles and relationships in research
Why The Nation Needs A Policy Push On Patient-Centered Health Care
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,67 |
| Citation span | 2023 - 2026 (4) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 2 |