‘It reshaped how I will do research’
A qualitative exploration of team members’ experiences with youth and family engagement in a randomized controlled trial
Bibliographic Data
BACKGROUND: Engaging youth and family members as active partners in research and service design offers great promise in improving projects. In youth mental health, recent research has highlighted the value of youth and family engagement. However, research on the experience and impacts of engagement is sparse. OBJECTIVE: This study explores the project team's experience of youth and family engagement in the design and development of the YouthCan IMPACT randomized controlled trial and clinical service pathway design. DESIGN: Qualitative data collected using semi-structured interviews and a focus group as part of the YouthCan IMPACT clinical trial were analysed to understand the impacts of engagement. Twenty-eight team members were interviewed, including youth and family members. A qualitative content analysis was conducted, with a member checking process. RESULTS: Team members reported facilitators, barriers and impacts of youth and family engagement. Facilitators included a safe environment and strong procedures conducive to inclusion in co-design. Barriers included logistical, structural and institutional constraints. Overall, team members found youth and family engagement to be valuable and to positively impact the research and service design process. DISCUSSION AND CONCLUSIONS: Youth and family engagement played a critical role in research and clinical service pathway design. The team found that their involvement improved the quality of the research and service pathway through sustained and multifaceted engagement. Facilitators and barriers to engagement may serve to guide future engagement initiatives. Future research should evaluate the long-term impact of early engagement and further focus on family engagement. PATIENT/PUBLIC CONTRIBUTION: Youth and family members were engaged in the data analysis and interpretation process
Business · Community engagement · Focus group · Medical education · Mental health · Political science · Psychotherapist · Public engagement · Public relations · Qualitative property · Qualitative research · Research design · Sociology · Youth engagement · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Nursing · Participatory Visual Research Methods · Psychology · Social Psychology
Continuity Is Essential
Exploring the impact of engagement in mental health and substance use research
Youth engagement in mental health research
Patient and public involvement in health research from researchers' perspective
Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience
Aire ouverte Laval
Age of onset of mental disorders
A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities
Integrated knowledge translation (IKT) in health care
Prevention and early intervention in youth mental health
Patient engagement in research
The conceptual basis for interprofessional collaboration
Qualitative Rigor or Research Validity in Qualitative Research
Patient And Family Engagement
Fostering implementation of health services research findings into practice
Engaging youth in research planning, design and execution
Innovate Research
Implementation of a youth‐adult partnership model in youth mental health systems research
Finding harmony within dissonance
Enhancing researcher capacity to engage youth in research
Patient stakeholder engagement in research
Methods and impact of engagement in research, from theory to practice and back again
Member Checking
Qualitative Content Analysis
Co-designing Services for Youth With Mental Health Issues
| Unique citing works | 6 |
|---|---|
| Citations per year | 1,5 |
| Citation span | 2022 - 2025 (4) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 6 |