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Variable access to quality nutrition information regarding inflammatory bowel disease

A survey of patients and health professionals and objective examination of written information

Bibliographic Data

ID19508314
AuthorsAlexis C Prince (Diabetes and Nutritional Sciences Division School of Medicine King's College London London UK), Arifa Moosa (Diabetes and Nutritional Sciences Division School of Medicine King's College London London UK), Miranda CE Lomer (0000-0002-9369-8115, King's College London), Miranda C E Lomer (Diabetes and Nutritional Sciences Division School of Medicine King's College London London UK), Dianne P Reidlinger (0000-0002-9993-8239, Diabetes and Nutritional Sciences Division School of Medicine King's College London London UK), Kevin Whelan (0000-0002-3949-9561, Diabetes and Nutritional Sciences Division School of Medicine King's College London London UK)
Year2015
Volume18
Issue6
Pages2501-2512
Publication date2015-12-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.12219
PMID24934409
OpenAlexW1970077211
LanguageEN
Citations received3
References cited36

BACKGROUND: Patients with inflammatory bowel disease (IBD) report a range of nutritional and dietary problems and high-quality written information should be available on these. There is little research investigating the availability and quality of such information for patients with IBD. OBJECTIVE: This study assessed the type and quality of written information on nutrition and diet available to patients with IBD and the opinions of patients and health professionals. SETTING AND PARTICIPANTS: Seventy-two patients with IBD were recruited from a large gastroenterology outpatient centre in England. One hundred dietitians from across the United Kingdom were also recruited. METHODS: Face-to-face surveys were conducted with patients with IBD. Questions regarding the use, format and usefulness of dietary information received were probed. Dietitians were surveyed regarding written dietary information used in clinical practice. Samples of IBD-specific dietary information used across the UK were objectively assessed using two validated tools. MAIN RESULTS: The majority of patients rated written information as 'good' or 'very good', with the most useful information relating to 'general diet and IBD'. Forty-nine (49%) dietitians reported gaps in written information available for patients with IBD. Fifty-three different samples of IBD-specific information sheets were returned, with widely variable objective quality ratings. Commercially produced written information scored greater than locally produced information (BMA tool, P < 0.05). CONCLUSIONS: Patient access to high-quality, written, IBD-specific dietary information is variable. IBD-specific written nutrition information needs to be developed in accordance with validated tools to empower patients, encourage self-management and overcome nutritional implications of IBD

Disease · Family medicine · Health care · Health information · Health professionals · Information quality · Information system · Nutrition information · Dietetics, Nutrition, and Education · Health Literacy and Information Accessibility · Inflammatory Bowel Disease · Medicine · Obesity and Health Practices · Internal Medicine

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Citations per year0.43
Citation span2019 - 2021 (3)
Highly citedNo

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