Needs assessment and patient-guided development of a video-based diabetic retinopathy patient education tool
Bibliographic Data
| ID | 21323697 |
|---|---|
| Authors | Osama M Ahmed (0000-0003-3781-9709, Kellogg Eye Center, University of Michigan, Ann Arbor, MI, USA), Serina S Applebaum (0000-0001-9062-6178, Yale School of Medicine, New Haven, CT, USA, corresponding author), Maham Ahmad (Yale School of Medicine, New Haven, CT, USA), Danya M Ahmed (University of Saskatchewan), Prerak Juthani (Yale School of Medicine, New Haven, CT, USA), Prerak V Juthani (0000-0002-8760-3124, Yale University), Kristen Nwanyanwu (0000-0003-1146-7733, Department of Ophthalmology & Visual Science, Yale School of Medicine, New Haven, CT, USA) |
| Year | 2024 |
| Volume | 83 |
| Issue | 6 |
| Pages | 587-597 |
| Publication date | 2024-10-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Education Journal (JOURNAL) |
| Journal identifiers | ISSN: 0017-8969 • E-ISSN: 1748-8176 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/00178969241258818 |
| OpenAlex | W4399652171 |
| Language | EN |
| Citations received | 1 |
| References cited | 19 |
Objective: To gain retina physicians’ and diabetic retinopathy (DR) patients’ perspectives on needs and opportunities in DR education, and then develop and pilot test an educational video. Design: This study utilised qualitative interview data for video creation, and interview and survey data for assessment. Setting: This study was conducted in a single large academic medical centre. Method: We conducted semi-structured interviews with attending retina physicians and DR patients (Cohort A) which were coded for themes about needs in DR patient education. Using these interviews, we designed and piloted a 6-minute user-centred animated video among a second patient cohort (Cohort B), who completed post-intervention interviews. Results: Four physicians and 14 DR patients participated in the study. Themes from Cohort A included accessible information, early management, lifestyle factors and emotional context. Physician themes included effective communication, visual information delivery and individual-level diabetes management. Cohort B commented on the subsequently created video’s improved accessibility, engagement and supplementation of their existing DR knowledge. Conclusion: Physicians and patients showed an interest in video education and identified unique educational needs. We used these insights to create a video that demonstrated positive patient uptake. Close attention to retina physicians’ and DR patients’ perspectives can offer a valuable approach in developing materials to increase patients’ health knowledge. Within the context studied, videos may be more accessible and engaging than the use of traditional print-based education materials
Cohort · Cohort study · Context (archaeology) · Diabetes mellitus · Diabetic retinopathy · Family medicine · Information needs · Medical education · Patient education · Computer Science · Diabetes Management and Education · Internal Medicine · Medicine · Mobile Health and mHealth Applications · Nursing · Psychology · Retinal Diseases and Treatments
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| Citations per year | 1 |
|---|---|
| Citation span | 2026 - 2026 (1) |
| Highly cited | No |