A principle‐based framework for disclosing a psychosis risk diagnosis
Bibliographic Data
| ID | 21504295 |
|---|---|
| Authors | Oliver Y Zhang (0000-0002-9979-5653, Faculty of Medicine, Nursing and Health Sciences Monash University Melbourne Victoria Australia, corresponding author), Doug McConnell (0000-0001-5813-0834, Oxford Uehiro Centre for Practical Ethics, Faculty of Philosophy University of Oxford Oxford UK), A Carter (0000-0002-3593-0772, Turner Institute for Brain and Mental Health Monash University Melbourne Victoria Australia), Jonathan Pugh (0000-0001-5308-6379, Oxford Uehiro Centre for Practical Ethics, Faculty of Philosophy University of Oxford Oxford UK) |
| Year | 2023 |
| Volume | 37 |
| Issue | 2 |
| Pages | 171-182 |
| Publication date | 2023-02-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Bioethics (JOURNAL) |
| Journal identifiers | ISSN: 0269-9702 • E-ISSN: 1467-8519 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/bioe.13106 |
| PMID | 36350086 |
| OpenAlex | W4308608913 |
| Language | EN |
| Citations received | 1 |
| References cited | 1 |
In recent decades, researchers have attempted to prospectively identify individuals at high risk of developing psychosis in the hope of delaying or preventing psychosis onset. These psychosis risk individuals are identified as being in an ‘At‐Risk Mental State’ (ARMS) through a standardised psychometric interview. However, disclosure of ARMS status has attracted criticism due to concerns about the risk–benefit ratio of disclosure to patients. Only approximately one quarter of ARMS patients develop psychosis after three years, raising concerns about the unnecessary harm associated with such ‘false‐positive’ results. These harms are especially pertinent when identifying psychosis risk individuals due to potential stigma and discrimination in a young clinical population. A dearth of high‐quality evidence supporting interventions for ARMS patients raises further doubts about the benefit accompanying an ARMS disclosure. Despite ongoing discussion in the bioethical literature, these concerns over the ethical justification of disclosure to ARMS patients are not directly addressed in clinical guidelines. In this paper, we aim to provide a unified disclosure strategy grounded in principle‐based analysis for ARMS clinicians. After considering the ethical values at stake in ARMS disclosure, and their normative significance, we argue that full disclosure of the ARMS label is favoured in the vast majority of clinical situations due to the strong normative significance of enhancing patients' understanding. We then compare our framework with other approaches to ARMS disclosure and outline its limitations
Alternative medicine · At risk mental state · Bioethics · Harm · Informed consent · Normative · Political science · Population · Psychiatry · Psychological intervention · Psychosis · Clinical Psychology · Healthcare Decision-Making and Restraints · Law · Medicine · Mental Health and Psychiatry · Psychology · Schizophrenia research and treatment · Social Psychology
| Citations per year | 0.33 |
|---|---|
| Citation span | 2023 - 2023 (1) |
| Highly cited | No |