The Role of Exceptionalism in the Evolution of Bioethical Regulation
Bibliographic Data
| ID | 21598461 |
|---|---|
| Authors | Sergei Shevchenko (0000-0002-7935-3444, Arheološki Institut, corresponding author), Alexey Zhavoronkov (0000-0001-8362-1782, Goethe University Frankfurt) |
| Year | 2024 |
| Volume | 33 |
| Issue | 2 |
| Pages | 185-197 |
| Publication date | 2024-04-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Cambridge Quarterly of Healthcare Ethics (JOURNAL) |
| Journal identifiers | ISSN: 0963-1801 • E-ISSN: 1469-2147 |
| Publisher | Cambridge University Press (CUP) (PUBLISHER) |
| DOI | 10.1017/s0963180123000336 |
| PMID | 37288492 |
| OpenAlex | W4379768496 |
| Language | EN |
| Citations received | 3 |
| References cited | 51 |
The paper aims to present a critical analysis of the phenomenon and notion of exceptionalism in bioethics. The authors demonstrate that exceptionalism pertains to phenomena that are not (yet) entirely familiar to us and could potentially bear risks regarding their regulation. After an overview of the state of the art, we briefly describe the origins and evolution of the concept, compared to exception and exclusion. In the second step, they look at the overall development debates on genetic exceptionalism, compared to other bioethical debates on exceptionalism, before presenting a detailed analysis of a specific case of early regulation of genetic screening. In the last part, the authors explain the historical background behind the connection between exceptionalism and exclusion in these debates. Their main conclusion is that while the initial stage of the discussion is shaped by the concept of exceptionalism and awareness of risks of exclusion, the later development centers around exceptions that are needed in detailed regulatory procedures
American exceptionalism · Bioethics · Environmental ethics · Epistemology · Exceptionalism · Law and economics · Phenomenon · Political science · Politics · Sociology · Biomedical Ethics and Regulation · Computer Science · Ethics in medical practice · Law · Neuroethics, Human Enhancement, Biomedical Innovations · Philosophy
Kant, Herder, and the Birth of Anthropology
Fichte's Addresses to the German Nation Reconsidered
American Exceptionalism in Crime and Punishment
Groundwork of the Metaphysics of Morals
Genetic exceptionalism, revisionism, pluralism and convergence in the ethics of insurance
Shadow of HIV exceptionalism 40 years later
Payment in challenge studies
Bioethics and the argumentative legacy of atrocities in medical history
The emergence of the “genetic counseling” profession as a counteraction to past eugenic concepts and practices
From Ethical Exceptionalism to Ethical Exceptions
Philosophies of Exclusion
Secular citizens, pious MPs
Geographies of welfare and exclusion
Stem Cell Policies in the United States and in Germany
Imaging or Imagining? A Neuroethics Challenge Informed by Genetics
Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa
Exception as Rule
| Citations per year | 1.5 |
|---|---|
| Citation span | 2024 - 2026 (3) |
| Highly cited | No |