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Reflections on Dementia-Related Stigma and Direct Support Seeking by Family Caregivers as Mediating Associations Between Caregiver Stress, Burden, and Well-Being

Bibliographic Data

ID21616167
AuthorsKaren E Schlag (0000-0001-6605-2960, Sealy Center on Aging, The University of Texas Medical Branch at Galveston, corresponding author), Anita L Vangelisti (0000-0002-8461-5859, The University of Texas at Austin)
Year2024
Volume39
Issue12
Pages2474-2485
Publication date2024-10-14
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueHealth Communication (JOURNAL)
Journal identifiersISSN: 1041-0236 • E-ISSN: 1532-7027
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/10410236.2023.2270248
PMID37876032
OpenAlexW4387931034
LanguageEN
Citations received1
References cited100

The demanding nature of caring for relatives with Alzheimer’s disease and related dementias (ADRD) can lead to family caregiver burden and poor health. The stigmatization of people with ADRD can also impact caregivers’ stress, while their support-seeking strategies may mitigate negative impacts of burden on their health. To examine hypothesized relationships, the present study considered whether different dimensions of ADRD family stigma influenced the association between a care recipient’s behavioral symptoms and their family caregiver’s perceived burden and if direct support seeking explained a connection between caregiver burden and well-being. Family caregivers (n = 375) completed a Qualtrics survey. Path analysis revealed ADRD behavioral symptoms predicted both caregiver and layperson forms of stigma. Layperson stigma also intervened between behavioral symptoms and caregiver burden. Direct support seeking mediated the association between caregiver burden and well-being. Findings underscore the utility of including stigma within ADRD caregiver stress models and studying caregiver health from network and communication perspectives

Caregiver burden · Caregiver stress · Dementia · Disease · Family caregivers · Layperson · Psychiatry · Psychotherapist · Social support · Clinical Psychology · Dementia and Cognitive Impairment Research · Family Caregiving in Mental Illness · Intergenerational Family Dynamics and Caregiving · Medicine · Psychology · Gerontology

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Unique citing works1
Citations per year1
Citation span2025 - 2025 (1)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 1

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