Perceptions of stigma among people affected by early- and late-onset Alzheimer's disease
Bibliographic Data
| ID | 4228777 |
|---|---|
| Authors | Rosalie Ashworth (0000-0003-4378-1735, University of Stirling) |
| Year | 2020 |
| Volume | 25 |
| Issue | 4 |
| Pages | 490-510 |
| Publication date | 2020-03-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105317720818 |
| PMID | 28810495 |
| OpenAlex | W2736919100 |
| Language | EN |
| Citations received | 8 |
| References cited | 79 |
The aim of this research was to explore perceptions of stigma among people with early- and late-onset Alzheimer's disease and those who support them, using questionnaires ( n = 44) and semi-structured interviews ( n = 14). Perceived stigma reporting was low in the questionnaires, whereas interviews revealed higher levels of perceived stigma in the form of unpredictable reactions to diagnosis, feeling stupid and ignorance of the condition among the public. Perceived stigma was managed in similar ways across age groups, focusing on 'being the lucky ones'. Results support the need to further tackle stigma and challenge expectations, particularly given the drive to diagnose people and thereby expose them to stigma
Disease · Feeling · Ignorance · Perception · Psychiatry · Stigma (botany · Medicine · Mental Health Treatment and Access · Psychology · Clinical Psychology · Social Psychology
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Looking ahead to a future with Alzheimer's disease
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Expanding current understandings of epistemic injustice and dementia
Experiences of stigma and discrimination among people living with dementia and family carers in Brazil
Peer support for the newly diagnosed
Experience of Younger-Onset Dementia Stigma
Qualitative evaluation and research methods
Planning for the future
The Zarit Burden Interview
The diagnosis of dementia due to Alzheimer's disease
Family caregivers of people with dementia
Participatory research
Research design
“Mini-mental state”
Stigma
Prenatal Care Use Among Women of Low Income
Phenomena of awareness in dementia
Socioemotional Selectivity Theory, Aging, and Health
Subjective Experience of Family Stigma as Reported by Children of Alzheimer’s Disease Patients
Mixed Methods Sampling
Self-identifying as a caregiver
Reconsidering the term ‘carer’
A Theoretical Perspective on Coping With Stigma
Gains and losses in development throughout adulthood as perceived by different adult age groups
Adaptation and the Life Cycle
Discredited” Versus “Discreditable
Using thematic analysis in psychology
The living dead? The construction of people with Alzheimer's disease as zombies
WITHDRAWN - Mixed Methods Sampling
Resisting social disenfranchisement
The Dimensionality of Stigma
Geneticization of Deviant Behavior and Consequences for Stigma
The living death of Alzheimer's' versus 'Take a walk to keep dementia at bay
Dementia and the phenomenon of social death
| Citations per year | 1.14 |
|---|---|
| Citation span | 2019 - 2026 (8) |
| Highly cited | No |