“It’s a little bit like cardiomyopathy Tinder”
Toward designing to facilitate locating peers and learning self-care ideas in online health communities
Bibliographic Data
| ID | 21642644 |
|---|---|
| Authors | Jhon Adrián Cerón-Guzmán (0000-0002-4895-6568, Eindhoven University of Technology, corresponding author), Daniel Tetteroo (0000-0002-2295-5022, Eindhoven University of Technology), Jun Hu (0000-0001-6782-3501, Eindhoven University of Technology), Panos Markopoulos (0000-0002-2001-7251, Eindhoven University of Technology) |
| Year | 2025 |
| Volume | 196 |
| Pages | 103441 |
| Publication date | 2025-02-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Human-Computer Studies (JOURNAL) |
| Journal identifiers | ISSN: 1071-5819 • E-ISSN: 1095-9300 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.ijhcs.2024.103441 |
| OpenAlex | W4405740239 |
| Language | EN |
| References cited | 39 |
Users of online health communities have difficulty finding others with similar health experiences. They are often asked to use keywords when searching for their peers, but it is not uncommon for them not to know the right terms. This becomes particularly complex when unsure what or whom they are looking for. Moreover, the richness of patient perspectives is lost in the volume of discussion threads. In this paper, we investigate how to design to facilitate locating peers and learning self-care ideas from them. We created a prototype mimicking a mobile application for an online health community. The application recommended other community members to connect with and suggested self-care ideas based on what they had tried. Following a user-centered qualitative evaluation, we explore what ten people with cardiovascular disease and three clinicians thought of the prototype. Our findings reveal the preponderance of the lifestyle profile in locating peers. In light of this, we argue that, as individuals seek to lead as normal a life as possible, the most helpful suggestions in their quest may come from peers most similar to them in terms of habits and activity level. We translate the research findings into recommendations to inform future design. • Our findings reveal the preponderance of the lifestyle profile in locating peers. • Seeking normalcy, individuals may favor suggestions from peers with similar lifestyles. • Peer recommendations, enabling user control and potentially reducing search efforts, were favored. • Design should attend to the everyday self-care strategies community members can contribute
Cardiology · Cardiomyopathy · Computer security · Heart failure · Internet privacy · Computer Science · Innovative Approaches in Technology and Social Development · Innovative Human-Technology Interaction · Medicine · Psychology · Technology Use by Older Adults
Health Information, Credibility, Homophily, and Influence via the Internet
Heart Disease and Stroke Statistics—2023 Update
Exploring crowdsourced self-care techniques
A worked example of Braun and Clarke’s approach to reflexive thematic analysis
Digital Media, Youth, and Credibility
Not Sure Sharing Does Anything Extra for Me”
Turning to Peers
Patients’ experiential knowledge and expertise in health care
Evaluation of a peer support program for women with breast cancer—lessons for practitioners
Peer interventions to promote health
Using thematic analysis in psychology
Successful Qualitative Research
Birds of a Feather
| Highly cited | No |
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