Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

‘Working Together to Meet in the Middle’. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research

Bibliographic Data

ID21700464
AuthorsLisa D Hawke (0000-0003-1108-9453, Centre for Addiction and Mental Health), Joshua Dunphy (Centre for Addiction and Mental Health), Natasha Y Sheikhan (0000-0002-0471-4735, Centre for Addiction and Mental Health), Wuraola Dada‐Philips (Centre for Addiction and Mental Health), Shoshana Hauer (Centre for Addiction and Mental Health), Charlotte Munro (0000-0003-1911-7586, Centre for Addiction and Mental Health), Claudia Sendanyoye (0000-0003-0607-5161, Centre for Addiction and Mental Health), Tanya Halsall (0000-0001-5791-0986, Royal Ottawa Mental Health Centre), Gillian Strudwick (0000-0002-1080-7372, Centre for Addiction and Mental Health), Yona Lunsky (0000-0002-1866-9728, Centre for Addiction and Mental Health)
Year2026
Volume29
Issue4
Pagese70730-e70730
Publication date2026-08-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.70730
PMID42370725
OpenAlexW7166533822
LanguageEN
Citations received1
References cited42

Dynamics (music) · Focus group · Lived experience · Mental health · Power (physics) · Qualitative research · Thematic analysis · Health Policy Implementation Science · Mental Health and Patient Involvement · Participatory Visual Research Methods

  • ‘That Essence of Empowerment’

    Open Access•Catherine O'Donnell, Oliver Ardill‐Young et al.•Health Expectations•2026

  • The social determinants of mental health and disorder

    Open Access•J B Kirkbride, Deidre M Anglin et al.•World Psychiatry•2024

  • Stigma and substance use disorders

    Lawrence Hsin Yang, Liang Yi Wong et al.•Current Opinion in Psychiatry•2017

  • Public Stigma of Mental Illness in the United States

    Open Access•Angela M Parcesepe, L J Cabassa•Administration and Policy in…•2013

  • Mental illness-related stigma in healthcare

    Open Access•Stephanie Knaak, Ed Mantler et al.•Healthcare Management Forum•2017

  • GRIPP2 reporting checklists

    Open Access•Sophie Staniszewska, Jo Brett et al.•BMJ•2017

  • Research electronic data capture (Redcap)—A metadata-driven methodology and workflow process for providing translational research informatics support

    Open Access•Paul A Harris, Robert Taylor et al.•Journal of Biomedical Informatics•2009

  • “A sense of community.” A qualitative descriptive study on how to build relationships and rapport with people with lived/living experience and caregivers engaged in mental health and substance use health research

    Open Access•Diana Kaliza, Wuraola Dada-Phillips et al.•Social Sciences & Humanities Open•2026

  • A research approach for co‐designing education with healthcare consumers

    Open Access•Gabrielle Brand, Carli Sheers et al.•Medical Education•2021

  • Lived Experience and Family Engagement in Mental Health and Substance use Health Research

    Open Access•Lisa D Hawke, Lena C Quilty et al.•Health Expectations•2024

  • An empirically based conceptual framework for fostering meaningful patient engagement in research

    Open Access•Clayon B Hamilton, Alison M Hoens et al.•Health Expectations•2018

  • Exploring the impact of engagement in mental health and substance use research

    Open Access•Natasha Y Sheikhan, Kerry Kuluski et al.•Health Expectations•2023

  • Best Practices Guidelines for the Engagement of People With Lived Experience and Family Members in Mental Health and Substance Use Health Research

    Open Access•Lisa D Hawke, Wuraola Dada‐Phillips et al.•Health Expectations•2025

  • A qualitative evaluation of coproduction of research

    Open Access•Joanne Worsley, Mick Mckeown et al.•Health Expectations•2022

  • Shortening and validation of the Patient Engagement In Research Scale (Peirs) for measuring meaningful patient and family caregiver engagement

    Open Access•Clayon B Hamilton, Alison M Hoens et al.•Health Expectations•2021

  • Pragmatism as a paradigm for patient‐oriented research

    Open Access•Brooke Allemang, K C Sitter et al.•Health Expectations•2022

  • Applying Patient and Public Involvement in preclinical research

    Open Access•Pádraig Carroll, Adrian Dervan et al.•Health Expectations•2022

  • Narrative Perspectives on Substance Use, Power, and Injustice

    Stephanie Elias Sarabia, John P McTighe•Journal of Social Work Practice…•2020

  • Maybe I Shouldn’t Talk’

    Open Access•Joy Llewellyn-Beardsley, Stefan Rennick‐Egglestone et al.•Qualitative Health Research•2022

  • Sample sizes for saturation in qualitative research

    Open Access•Monique Hennink, Bruno Van Swinderen et al.•Social Science & Medicine•2022

  • Stop Stealing Our Stories

    Eileen Pittaway, Luigi Bartolomei et al.•Journal of Human Rights Practice•2010

  • What are Important Ways of Sharing Power in Health Research Priority Setting? Perspectives From People With Lived Experience and Members of the Public

    Open Access•Boriana Pratt•Journal of Empirical Research on…•2021

  • From a Single Voice to Diversity

    Open Access•Brett Scholz, Lucy Kirk et al.•Qualitative Health Research•2024

  • Demonstrating Rigor Using Thematic Analysis

    Open Access•Jennifer Fereday, Eimear Muir-Cochrane•International Journal of…•2006

  • More than being against it

    Open Access•Simon Corneau, Vicky Stergiopoulos•Transcultural Psychiatry•2012

  • Power, Trust, and Risk

    Open Access•Harald Grimen•Medical Anthropology Quarterly•2009

  • Can consumer choice replace trust in the National Health Service in England? Towards developing an affective psychosocial conception of trust in health care

    Open Access•Marianna Fotaki•Sociology of Health & Illness•2014

Citations per year1
Citation span2026 - 2026 (1)
Highly citedNo

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae