Adherence and Recursive Perception Among Young Adults with Cystic Fibrosis
Bibliographic Data
| ID | 2171440 |
|---|---|
| Authors | D August Oddleifson (0000-0002-9391-1289, Dartmouth College, corresponding author), Gregory S Sawicki (0000-0002-5588-6297, Division of Pulmonary and Respiratory Diseases, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA) |
| Year | 2017 |
| Volume | 24 |
| Issue | 1 |
| Pages | 65-80 |
| Publication date | 2017-01-02 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Anthropology and Medicine (JOURNAL) |
| Journal identifiers | ISSN: 1364-8470 • E-ISSN: 1469-2910 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/13648470.2017.1278865 |
| PMID | 28292207 |
| OpenAlex | W2607796061 |
| Language | EN |
| Citations received | 1 |
| References cited | 28 |
Adherence to prescribed treatment is a pressing issue for adolescents and young adults with cystic fibrosis (CF). This paper presents two narratives from the thematic analysis of unstructured interviews with 14 adolescents, young adults, and older adults living with CF. Through a new identity-based framework termed recursive perception that draws focus on how an individual perceives how others view them, it explores the social context of adherence and self-care among young adults with CF. It demonstrates that an individual's understanding of self and desire to maintain a certain image for peers can be deeply embedded in adherence and self-care patterns, leading individuals to feel they need to choose between tending to their health needs and living their lives. This suggests that current biomedical innovation in CF care must be complemented with renewed efforts to find effective means to empower young adults with CF to successfully navigate the social challenges of their illness and avoid the pitfalls of nonadherence that can lead to a permanent worsening of their health condition
Context (archaeology · Developmental psychology · Health care · Identity (music · Narrative · Narrative inquiry · Perception · Political science · Qualitative research · Sociology · Thematic analysis · Young adult · Adolescent and Pediatric Healthcare · Cystic Fibrosis Research Advances · Family and Disability Support Research · Medicine · Psychology · Gerontology
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| Unique citing works | 1 |
|---|---|
| Citations per year | 0.5 |
| Citation span | 2024 - 2024 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |