I've Never Not Had it So I Don't Really Know What it's Like Not to
Nondifference and Biographical Disruption Among Children and Young People With Cystic Fibrosis
Dados Bibliográficos
| ID | 4633600 |
|---|---|
| Autores | Brian Williams (0000-0002-3174-4876, University of Dundee, Dundee, United Kingdom,, autor correspondente), Joanne Corlett (0000-0001-5661-5969, University of St Andrews, St Andrews, United Kingdom), Jon S Dowell (University of Dundee, Dundee, United Kingdom), Jon Dowell (0000-0001-5500-2706, University of Dundee), Joanne Coyle (0000-0002-4630-0266, University of Dundee, Dundee, United Kingdom), Somnath Mukhopadhyay (0000-0002-3688-5512, Brighton & Sussex Medical School, Brighton, United Kingdom) |
| Ano | 2009 |
| Volume | 19 |
| Fascículo | 10 |
| Páginas | 1443-1455 |
| Data de publicação | 2009-10-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Qualitative Health Research (JOURNAL) |
| Identificadores do periódico | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732309348363 |
| PMID | 19805806 |
| OpenAlex | W2110946771 |
| Idioma | EN |
| Citações recebidas | 28 |
| Referências citadas | 46 |
The relevance of biographical disruption and loss of self for children and young people is unclear, particularly in cases of congenital illness such as cystic fibrosis, where no prior period of wellness, stability, or perceived normality might exist. We explored the meaning, importance, and forms of maintenance of ideas of normality among 32 children and young people with cystic fibrosis. We examine the ways in which normalcy is produced, maintained, and threatened, and discuss the implications for the applicability and relevance of these traditional sociological concepts. Analysis of children's and young people's accounts resulted in a conceptualization of four forms of normalcy based on personal and social definitions and audiences. Biographical disruption appeared relevant but in a more nuanced form than its usual conceptualization when applied to adult populations. Maintaining normality within the family resulted in continual biographical revision in anticipation of future illness trajectory and life course
Conceptualization · Developmental psychology · Normality · Psychotherapist · Family and Disability Support Research · Family Support in Illness · Identity, Memory, and Therapy · Psychology · Social Psychology
Récits de soi de jeunes vivant avec la mucoviscidose
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L’expérience de la maladie dans le contexte d’une faible accessibilité des soins médicaux. Le parcours d’un jeune drépanocytaire à Nouakchott (Mauritanie)
‘They Sent Me Out to School, and I Came Back with a Baby’
Growing up, ill
Les temporalités singulières de l’après-cancer pédiatrique.Résultats d’une recherche par les pairs
Navigating the Limits of Diagnosis
Chronic illness as biographical contingency? Young people's experiences of asthma
Young adults' experiences of biographical retrogression whilst living with long Covid
Developing biographies
Biographical accounts of the impact of fatigue in young people with sickle cell disease
The impact of living with long‐term conditions in young adulthood on mental health and identity
Self‐management and skills acquisition in boys with haemophilia
Untimely illness
Re-working biographies
The agentic Self and uncontrollable body
A Qualitative Synthesis of Adolescents' Experiences of Living With Spina Bifida
Five-Year-Old Children's Tuning-In and Negotiation Strategies in an Immunization Situation
Immigrants to Health
O diagnóstico como "passaporte" para reconhecimento e significação das experiências na dislexia
A Metacognitive Intervention of Narrative Imagery for young people with cystic fibrosis
Becoming men
O protagonismo de jovens com doença renal crônica e a dádiva na construção da atenção à saúde
Re-Defining the Family Biography When a Child Suffers from a Life-Limiting Illness
Shifting Narratives of the Self - Students' Experiences of Chronicity and Multiplicity in the Management of Chronic Illness at University
It seems like you're going around in circles
Social Network Dynamics and Biographical Disruption
Adherence and Recursive Perception Among Young Adults with Cystic Fibrosis
The Evolving Self
The Private Worlds of Dying Children
Chronic illness – a disruption in life
Qualitative data analysis for applied policy research
Stigma
Chronic Illness and the Quality of Life
Prenatal Care Use Among Women of Low Income
Normalization in Families Raising a Child Who Is Medically Fragile/Technology Dependent and Developmentally Delayed
Mothers and Their Disabled Children
Where Are the Children's Experiences? Analysing Social and Cultural Exclusion in 'Special' and 'Mainstream' Schools
Stature and Stigma
In their Own Words
Managing Life with a Chronic Condition
Living a 'normal' life
Getting Used to It
Surviving Childhood Leukemia
Only when I Cough? Adults' Disclosure of Cystic Fibrosis
From child to adult
Living with asthma
The Constitution of Society
Living with chronic illness in the family setting
Ideology in the clinical context
Chronic illness as biographical disruption
Loss of self
Pumping iron
Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept
Medicines and the maintenance of ordinariness in the household management of childhood asthma
Illness in the Context of Older Age
Young South Asian deaf people and their families
| Obras citantes distintas | 28 |
|---|---|
| Citações por ano | 1,87 |
| Intervalo de citações | 2011 - 2025 (15) |
| Velocidade de citação | recent |
| Altamente citado | Não |
| Tipos de citação | Neutras: 28 |