Mapping experiences of pathological demand avoidance in Ireland
Bibliographic Data
| ID | 21722976 |
|---|---|
| Authors | Alison Doyle (0000-0002-2121-0109, Caerus Education Ireland, corresponding author), Neil Kenny (0000-0002-2340-6586, School of Inclusive & Special Education Dublin City University Ireland) |
| Year | 2023 |
| Volume | 23 |
| Issue | 1 |
| Pages | 52-61 |
| Publication date | 2023-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Research in Special Educational Needs (JOURNAL) |
| Journal identifiers | ISSN: 1471-3802 • E-ISSN: 1471-3802 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1471-3802.12579 |
| OpenAlex | W4308914907 |
| Language | EN |
| Citations received | 4 |
| References cited | 22 |
Pathological demand avoidance (PDA) is contended to be a distinct presentation within autism characterised by extreme levels of anxiety in response to the demands of everyday life, manifested in excessive levels of demand avoidance. This results in complex interactions with service providers in education and health settings, impacting on outcomes for individuals and their families. This national study sought to gather the viewpoints of individuals who experience PDA, families, and practitioners, with the intention of determining levels of knowledge, recognition and understanding of PDA; exploring current pathways to assessment and diagnosis; capturing experiences of access to education and healthcare services; identifying effective intervention and support strategies; and illuminating education and health outcomes for individuals and families. This mixed‐method study collates survey responses from N = 264 parents, N = 9 life partners, N = 6 individuals experiencing PDA and N = 54 practitioners, and in‐depth individual and focus group interviews from these cohorts. Findings suggest that a flexible, informed and individualised approach to assessment and service provision for individuals presenting with a PDA profile is essential. Practitioners universally referred to the necessity for a streamlined, integrated and multi‐disciplinary approach. The reported disconnect between education and health systems indicates a need for access to services on an equitable basis
Business · Focus group · Medical education · Psychological intervention · Service provider · Viewpoints · Autism Spectrum Disorder Research · Child Nutrition and Feeding Issues · Family and Disability Support Research · Medicine · Nursing · Psychology · Marketing
Examining the relationship between anxiety and pathological demand avoidance in adults
Methods of studying pathological demand avoidance in children and adolescents
Practicing psychologists’ accounts of demand avoidance and extreme demand avoidance in children and adolescents
“I Saw Things through a Different Lens…”
A Hybrid Approach to Thematic Analysis in Qualitative Research
Anxiety in children and adolescents with autism spectrum disorders
Using Ecological Frameworks to Advance a Field of Research, Practice, and Policy on Aging-in-Place Initiatives
An approach to supporting young people with autism spectrum disorder and high anxiety to re-engage with formal education – the impact on young people and their families
Pathological demand avoidance
Research Design
Designing and Conducting Mixed Methods Research
Demonstrating Rigor Using Thematic Analysis
| Unique citing works | 4 |
|---|---|
| Citations per year | 1,33 |
| Citation span | 2023 - 2024 (2) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 4 |