Participatory research in a pandemic
The impact of Covid-19 on co-designing research with autistic people
Bibliographic Data
| ID | 21724313 |
|---|---|
| Authors | Danielle Rudd (0000-0001-6664-9556, Northumbria University, corresponding author), Se Kwang Hwang (0000-0002-9843-0724, Northumbria University) |
| Year | 2022 |
| Volume | 21 |
| Issue | 5 |
| Pages | 869-879 |
| Publication date | 2022-09-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Social Work (JOURNAL) |
| Journal identifiers | ISSN: 1473-3250 • E-ISSN: 1741-3117 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/14733250211040102 |
| OpenAlex | W3191655699 |
| Language | EN |
| Citations received | 2 |
| References cited | 28 |
Social work research should adopt a critical approach to research methodology, opposing oppression that is reproduced through epistemological assumptions or research methods and processes. However, traditional approaches to autism research have often problematised and pathologized autistic 1 individuals, reinforcing autistic people’s positions as passive subjects. This has resulted in autistic people being largely excluded from the production of knowledge about autism, and about the needs of autistic people. Participatory approaches promote collaborative approaches to enquiry and posit autistic people as active co-constructors of knowledge, a stance that is congruent with social work values of social justice and liberation. However, Covid-19 is not only altering our everyday life but also upending social research. This paper discusses the challenges faced by a participatory study involving autistic people during the Covid-19 pandemic. This paper examines how Covid-19 increased the individual vulnerability of autistic participants and changed their research priorities, increased the researcher’s decision-making power, and placed greater emphasis on barriers created by inaccessible methods. Covid-19 did not present novel challenges, but rather exacerbated existing tensions and inevitable challenges that are inherent in adopting an approach that aims to oppose oppression
Autism · Citizen journalism · Developmental psychology · Oppression · Pandemic · Participatory action research · Political science · Politics · Public relations · Sociology · Computer Science · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology · Social Psychology
Anti-Oppressive Social Work Theory and Practice
The Aaspire practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants
What should autism research focus upon? Community views and priorities from the United Kingdom
Which terms should be used to describe autism? Perspectives from the UK autism community
Making the future together
Anxiety and depression in adults with autism spectrum disorder
The Politics of Disablement
Photovoice
Participatory Action Research Approaches and Methods
On the Road to Damascus
Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships
Improving research about us, with us
Picture this
Anti-Oppressive Research in Social Work
Parasites, Pawns and Partners
What is participatory research
| Citations per year | 1 |
|---|---|
| Citation span | 2024 - 2025 (2) |
| Highly cited | No |