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“Our Unified Voice to Implement Change and Advance the View of Young Carers and Young Adult Carers.” An Appreciative Evaluation of the Impact of a National Young Carer Health Champions Programme

Bibliographic Data

ID21834854
AuthorsNicholas Medforth (Liverpool John Moores University, corresponding author)
Year2022
Volume37
Issue6
Pages581-598
Publication date2022-08-18
Open AccessYes
TypeARTICLE
VenueSocial Work in Public Health (JOURNAL)
Journal identifiersISSN: 1937-190X • E-ISSN: 1937-1918
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/19371918.2022.2058673
PMID35373717
OpenAlexW4226194784
LanguageEN
Citations received2
References cited13

A growing evidence base highlights the challenges and support needs of young carers and young adult carers, however research and policy frequently neglect the voice and experience of young people themselves. A team at NHS England developed the Young Carer Health Champions programme to bring together young carers and young adult carers from across England, establishing a network of peer support, sharing of experiences and improving confidence, health literacy and wellbeing. This commissioned independent evaluation aimed to explore the impact of the programme and inform future delivery. Taking a qualitative case study approach, young participants have a central voice, illuminated through the observations of the researcher during residential activities, and data generated during a focus group and telephone and on-line interviews. Findings demonstrate positive impact on the personal development and lifestyles of the Young Carer Health Champions, and their journey from beneficiary to pro-active shaper of services and policy

Beneficiary · Focus group · Medical education · Neglect · Peer support · Political science · Qualitative research · Sociology · Young adult · Childhood Cancer Survivors' Quality of Life · Family and Disability Support Research · Family Support in Illness · Medicine · Nursing · Psychology · Gerontology

  • Involving Children in Health Literacy Research

    Open Access•C Jenkins, Catherine L Jenkins et al.•Children•2022

  • We’re not just behind the scenes, we’re visible and upfront.’ Amplifying young carers’ voice using a community development approach in a UK city

    Sarah Boath, Martin E Purcell•Journal of Youth Studies•2025

  • Young Carers Research, Practice and Policy

    Open Access•Stephen Joseph, Joe Sempik et al.•Adolescent Research Review•2020

  • Fourth-Generation Evaluation

    Anne Neufeld, Alan Ryan et al.•Canadian Journal of Program…•1988

  • Young caregivers in the context of the HIV/Aids pandemic in sub‐Saharan Africa

    Open Access•Elsbeth Robson, N Ansell et al.•Population Space and Place•2006

  • Sampling in Interview-Based Qualitative Research

    O C Robinson•Qualitative Research in Psychology•2013

  • Where are we now? Twenty-five years of research, policy and practice on young carers

    Open Access•Jo Aldridge•Critical Social Policy•2018

  • Using thematic analysis in psychology

    Open Access•Braun, Virginia Braun et al.•Qualitative Research in Psychology•2006

  • Five Misunderstandings About Case-Study Research

    Open Access•Bent Flyvbjerg•Qualitative Inquiry•2006

  • A fractured journey of growth

    Lynne Mccormack, C White et al.•Community Work & Family•2017

Citations per year0.5
Citation span2022 - 2025 (4)
Highly citedNo

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Open DOIOpen Access
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