Personal data store ecosystems in health and social care

Bibliographic Data

ID22082811
AuthorsLaura Carmichael (0000-0001-9391-1310, University of Southampton, corresponding author), Wendy Hall (0000-0003-1984-0096, University of Southampton), Michael Boniface (0000-0002-9281-6095, University of Southampton)
Year2024
Volume12
Pages1348044-1348044
Publication date2024-02-07
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueFrontiers in Public Health (JOURNAL)
Journal identifiersISSN: 2296-2565 • E-ISSN: 2296-2565
PublisherFrontiers Media SA (PUBLISHER • CH)
DOI10.3389/fpubh.2024.1348044
PMID38384893
OpenAlexW4391595823
LanguageEN
Citations received2
References cited35

This paper considers how the development of personal data store ecosystems in health and social care may offer one person-centered approach to improving the ways in which individual generated and gathered data—e.g., from wearables and other personal monitoring and tracking devices—can be used for wellbeing, individual care, and research. Personal data stores aim to provide safe and secure digital spaces that enable people to self-manage, use, and share personal data with others in a way that aligns with their individual needs and preferences. A key motivation for personal data stores is to give an individual more access and meaningful control over their personal data, and greater visibility over how it is used by others. This commentary discusses meanings and motivations behind the personal data store concept—examples are provided to illustrate the opportunities such ecosystems can offer in health and social care, and associated research and implementation challenges are also examined

Computer security · Data science · Digital health · Health care · Internet privacy · Personal care · Wearable computer · Computer Science · Digital Mental Health Interventions · Medicine · Privacy, Security, and Data Protection · Psychology · Technology Use by Older Adults

Tools

Open DOIOpen Access