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Toward Removing Barriers in the Evaluation, Diagnosis, and Care of Individuals With Cerebral Visual Impairments

Bibliographic Data

ID22124601
AuthorsAmanda Lueck (0000-0002-1603-872X, San Francisco State University), Karen Harpster (0000-0003-1677-6367, Cincinnati Children's Hospital Medical Center), Elizabeth Hartmann (0000-0003-4341-7888, Lasell College), Helen St Clair Tracy (0009-0009-3224-066X, University of St Andrews), Monika Jones (0000-0001-6086-3236, Pediatric Epilepsy Surgery Alliance), Richard Legge (University of Nebraska Medical Center), Richard H Legge (University of Nebraska Medical Center), Barry Kran (New England College of Optometry), Barry S Kran (New England College of Optometry), John Ravenscroft (0000-0003-3386-4211, Education Scotland), Corinna M Bauer (0000-0001-9407-4657, Harvard University, corresponding author)
Year2023
Volume10
Issue2
Pages296-307
Publication date2023-10-01
Open AccessYes
TypeARTICLE
VenuePolicy Insights from the Behavioral and Brain Sciences (JOURNAL)
Journal identifiersISSN: 2372-7322 • E-ISSN: 2372-7330
PublisherSAGE Publications (PUBLISHER • US)
DOI10.1177/23727322231195213
OpenAlexW4387956578
LanguageEN
References cited67

Cerebral visual impairment (CVI) is a leading cause of pediatric visual impairment worldwide. Despite the ramifications on multiple developmental domains and quality of life factors, substantial barriers remain for evaluation, diagnosis, treatment, and education of this growing population of children and adults. At the root is a lack of consensus on the definition and diagnostic criteria of CVI and a narrow ocular/acuity-based classification of visual impairment. This article covers four main issues that need to be urgently addressed to make strides toward removing current barriers. These challenges highlight the need for policy change at multiple levels to help ensure that individuals with CVI will have access to appropriate (re)habilitation and education services regardless of their acuity or visual function. Suggested solutions include the implementation of a globally accepted definition of CVI and increased multidisciplinary training programs. These will support international efforts to develop and implement quantitative interdisciplinary assessment methods, identify meaningful and effective intervention approaches, and monitor long-term outcomes for those with CVI. Additionally, sensitive and specific markers can be identified for differentiating CVI from other related developmental conditions, such as autism spectrum disorder and developmental coordination disorder. Ultimately, these proposed changes will lead toward improved quality of life for individuals with CVI and their caregivers

Habilitation · Multidisciplinary approach · Physical medicine and rehabilitation · Population · Psychiatry · Visual impairment · Medicine · Nursing · Ophthalmology and Visual Impairment Studies · Psychology · Retinal Diseases and Treatments · Retinopathy of Prematurity Studies

  • Power is knowledge

    Nicola McDowell•Disability & Society•2020

Highly citedNo

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