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Examining Stress in Parents of Adults with Intellectual and Developmental Disabilities

Bibliographic Data

ID22430202
AuthorsKelli A Sanderson (0000-0002-9483-8474, California State University, Long Beach, corresponding author), Meghan M Burke (0000-0001-5287-2351, Vanderbilt University)
Year2026
Volume64
Issue3
Pages187-200
Publication date2026-05-04
Open AccessNo
TypeARTICLE
VenueIntellectual and Developmental Disabilities (JOURNAL)
Journal identifiersISSN: 1934-9491 • E-ISSN: 1934-9556
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/19349491.2026.2659663
OpenAlexW7161007532
LanguageEN
References cited53

Many parents of individuals with intellectual and developmental disabilities (IDD) experience high levels of stress. Such stress can negatively impact parents (e.g., create exhaustion, worsen physical and mental health) and their children with IDD (e.g., reduce their quality of care). By identifying specific stressors and their correlates, targeted interventions can be designed to mitigate stress and improve outcomes for families of adults with IDD. In this study, 518 parents of adult children with IDD responded to a national survey about their stress. Top stressors included future planning and a lack of daily activities for their adult children with IDD. Having an adult child with autism and being from collectivistic cultures were consistent correlates of greater stress. Implications for research, policy, and practice are discussed.

Autism · Child rearing · Developmental disorder · Intellectual disability · Public health · Disability Rights and Representation · Down syndrome and intellectual disability research · Family and Disability Support Research

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