Kinscapes, timescapes and genescapes
Families Living With Genetic Risk
Bibliographic Data
| ID | 2248759 |
|---|---|
| Authors | Paul Atkinson (0000-0001-8740-6561), Katie Featherstone (0000-0003-4999-8425, School of Nursing and Midwifery Studies Cardiff University UK), Maggie Gregory (Chordata Research UK) |
| Year | 2013 |
| Volume | 35 |
| Issue | 8 |
| Pages | 1227-1241 |
| Publication date | 2013-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.12034 |
| PMID | 23957884 |
| OpenAlex | W2134363040 |
| Language | EN |
| Citations received | 27 |
| References cited | 53 |
This article synthesises recent research examining how families live with genetic risk and the processes of genetic decision-making and disclosure among family members who have been or are at risk of transmitting a familial genetic condition. Its aim is to generate substantive theory that can inform our understanding of the interactional processes at work in the distribution of mutual knowledge and awareness of genetic risk in families. The article is structured around three interrelated concepts. Kinscape refers to the constellation of relations and relatedness that are recognised practically; timescape to the multiple temporal frames of social relations and their transformation and genescape to the constellation of knowledge, belief and practice surrounding genetic inheritance. All three concepts are simultaneously natural and cultural. Their intersections create the conditions of kinship and genetics
Biology · Constellation · Epistemology · Genetic Condition · Inheritance · Inheritance (genetic algorithm · Kinship · Natural (archaeology · Sociology · Foucault, Power, and Ethics · Psychology · Race, Genetics, and Society · Genetics · Social Psychology
Communicating Genetic Information in Families with Inherited Late-Onset Neurodegenerative Diseases
Life ‘on high alert’
Bioethics and philosophy of culture
Fluctuating salience in those living with genetic risk of motor neuron disease
Uma Questão De Família
Surveillance life and the shaping of ‘genetically at risk’ chronicities in Denmark
Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results
Difficult decisions and possible choices
Shaping the future and living in the present
Hidden in full sight
It didn’t mean anything” – moving within a landscape of knowledge to interpret genetics and genetic test results within familial cancer concerns
This Has to Do With My Identity. And I Don't Want to Make it Totally Transparent.” Identity Relevance in the Attitudes of Affected People and Laypersons to the Handling of High-Throughput Genomic Data
Bioarchaeology and Kinship
Is there a “right time” for bad news? Kairos in familial communication on hereditary breast and ovarian cancer risk
The Spillover of Genomic Testing Results in Families
Promoção da saúde em famílias com paramiloidose
High risk, mixed reward
Living with the rare late-onset genetic disease Cadasil
Discredited legacy
Whatever is bad goes back to the woman
Gene worlds
Empathetic knowledge
Imagining genomic medicine futures in primary care
Well, I knew this already' - explaining personal genetic risk information through narrative meaning-making
The Actionability of Exome sequencing testing results
The nuanced negative
Families dealing with the uncertainty of genetic disorders
Alternative Kinship, Marriage, and Reproduction
Embodied Progress
Experiencing the New Genetics
Strategic Interaction
Cultures of Relatedness
Anthropological Perspectives on Kinship
Born and Bred
Kinship, Law and the Unexpected
The Elephant in the RoomSilence and Denial in Everyday Life
Boundaries of Privacy
‘Everybody’s got a dad…’. Issues for lesbian families in the management of donor insemination
Commentary
Professional constructions of family and kinship in medical genetics
Medical Discourse and Time
I don't see any point in telling them’
Zones of Expertise and the Management of Uncertainty in Genetics Risk Communication
Allah is the scientist of the scientists
Embodied Progress
Constructing an account by contrast in counselling for childhood genetic testing
Exploring genetic responsibility for the self, family and kin in the case of hereditary raised cholesterol
Revealed identity
Managing self-responsibility through other-oriented blame
Making genetics not so important
Postgenomics, uncertain futures, and the familiarization of susceptibility genes
Carrier matching and collective socialization in community genetics
The Genealogical Imagination
Family Trees and Their Affinities
Re-thinking nature-culture
Decision-Making and Ante-Natal Screening for Sickle Cell and Thalassaemia Disorders
Assisted Reproductive Technologies and Culture Change
The micropolitics of responsibility vis-à-vis autonomy
Kinship, Cultural Preference and Immigration
There's this thing in our family
Doing the right thing
Genetic risk and the birth of the somatic individual
| Unique citing works | 27 |
|---|---|
| Citations per year | 2,25 |
| Citation span | 2014 - 2025 (12) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 27 |