The Ups and Downs of Down Syndrome
A Qualitative Study of Positive and Negative Parenting Experiences
Bibliographic Data
| ID | 2347852 |
|---|---|
| Authors | Laura Farkas (Kansas State University, Manhattan, KS, USA), Jessica D Cle, Jessica D Cless (0000-0003-3034-5889, Kansas State University, Manhattan, KS, USA), Adam W Cle, Adam W Cless (Kansas State University, Manhattan, KS, USA), Briana S Nelson Goff (0000-0001-7199-7109, Kansas State University, Manhattan, KS, USA, corresponding author), Ellen Bodine (Kansas State University, Manhattan, KS, USA), Ashley Edelman (Kansas State University, Manhattan, KS, USA) |
| Year | 2019 |
| Volume | 40 |
| Issue | 4 |
| Pages | 518-539 |
| Publication date | 2019-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Family Issues (JOURNAL) |
| Journal identifiers | ISSN: 0192-513X • E-ISSN: 1552-5481 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/0192513x18812192 |
| OpenAlex | W2901586535 |
| Language | EN |
| Citations received | 11 |
| References cited | 47 |
The current study sought to expand current literature by providing a comparison of the positive and negative experiences reported by parents of children with a Down syndrome (DS) diagnosis. A total of 435 participants from a national study were included in the current qualitative analysis based on responses to online survey data from two research questions asking parents to describe their most positive and most negative experiences in parenting their child with DS. Positive experiences themes included the following: impact on parents and other people, child's achievements, social acceptance/connection, and everyday/everything/many. Negative experiences themes included medical experiences, lack of social acceptance/connection, the DS diagnosis, and the impact on parents and other people. Implications for professionals and future research are presented
Developmental psychology · Qualitative research · Sociology · Clinical Psychology · Down syndrome and intellectual disability research · Family and Disability Support Research · Infant Development and Preterm Care · Psychology · Social Psychology
Historias de vida de familias con hijos e hijas con síndrome de Angelman
La “ventaja del síndrome de Down” en la calidad de vida de jóvenes con discapacidad intelectual
Trajectories of Change Following Relationship Education for Couples Raising Children With Disabilities
A conceptual model of parenting children with disabilities
Genetic Responsibility in Germany and Israel
Children and Youth on the Front Line
The Story of a Mother Raising a Child with Down Syndrome
Parenthood and Well‐Being
Views on disability and prenatal testing among families with Down syndrome and disability activists
Family Sense-Making After a Down Syndrome Diagnosis
Parental stress and resilience in autism spectrum disorder and Down syndrome
Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome
Ambiguous Loss Theory
The Impact of Parenting Stress
The health of caregivers for children with disabilities
The Coding Process and Its Challenges
Stress, appraisal, and coping
Family Stress Management
A Review of Fathers' Accounts of Their Experiences of Parenting Children with Disabilities
Less Stress, More Rewarding
The Family Stress Process
What do you mean 'what's wrong with her
Parents' Experiences of Caring for a Child With Autism Spectrum Disorder
Comparing Parents of Children With Down Syndrome at Different Life Span Stages
Living Stigma
| Unique citing works | 11 |
|---|---|
| Citations per year | 0,5 |
| Citation span | 2004 - 2026 (23) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 11 |