Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Forming strong cultural identities in an intersecting space of Indigeneity and autism using participatory action research and digital storytelling

Bibliographic Data

ID2389450
AuthorsHeather A Simpson (0000-0002-7691-9801, corresponding author)
Year2023
Volume19
Issue4
Pages862-872
Publication date2023-12-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueAlterNative An International Journal of Indigenous Peoples (JOURNAL)
Journal identifiersISSN: 1177-1801 • E-ISSN: 1174-1740
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/11771801231197838
OpenAlexW4389001810
LanguageEN
Citations received2
References cited35

This research responds to the urgency to disrupt patterns of social injustice, exclusion, and cultural genocide while promoting positive identity formation, pride, and resilience for Indigenous autistics in the post-secondary education system. This study utilized a participatory action research approach positioning participants as collaborators with the research team. Data collection involved qualitative data derived from the transcripts of online sessions, participant digital stories, and a summative survey. Thematic analysis was used to identify emergent themes of individual and a collective narrative. Findings are presented as an original concept of the author called Thrivival: The Fire Within, comprising four themes: self-identity, time, balance, and community. This work contributes to a broader understanding and expressions of Indigenization, decolonization, equity, diversity, and inclusion in post-secondary teaching, learning, and policy to better support the identity and success of Indigenous autistic students and arguably, all students who experience intersectional discrimination within post-secondary education systems

Action research · Indigenous · Participatory action research · Pedagogy · Qualitative research · Social science · Sociology · Thematic analysis · Anthropology · Autism Spectrum Disorder Research · Psychology · Service-Learning and Community Engagement · Youth Development and Social Support

  • Late-Diagnosed Neurodivergent Doctoral Students and Identity Negotiation

    Open Access•Jessica C Kitchens, Carl A Frizell et al.•Human Development•2026

  • Autism, Disability, and Being Well in Place

    Open Access•Franz Van Beusekom, Gill Rutherford et al.•Geography Compass•2025

  • Decolonizing both researcher and research and its effectiveness in Indigenous research

    Open Access•R Datta•Research Ethics•2018

  • Living, breathing settler-colonialism

    Avery Smith, Hine Funaki et al.•Higher Education Research &…•2021

  • Two‐eyed seeing

    Open Access•Andrea McKivett, Hadi Saputra Prasetya et al.•Medical Education•2020

  • Thematic analysis of qualitative data

    Michelle E Kiger, Lara Varpio•Medical Teacher•2020

  • Decolonization of knowledge, epistemicide, participatory research and higher education

    Open Access•Budd L Hall, Rajesh Tandon•Research for All•2017

  • Forming strong cultural identities in an intersecting space of indigeneity and autism in Canada, the United States, Australia, and New Zealand

    Open Access•Heather A Simpson•AlterNative An International…•2021

  • Exploring autism and music interventions through a First Nations lens

    Open Access•Anne Lindblom•AlterNative An International…•2017

  • Exploring the Perceptions of and Experiences with Traditional Foods among First Nations Female Youth

    Open Access•Rebecca Hanemaayer, Kimberley Anderson et al.•International Journal of…•2020

  • Mental Health Issues in Post-Secondary Students with Autism Spectrum Disorder

    Open Access•Carly A Mcmorris, Jessica Baraskewich et al.•International Journal of Mental…•2018

  • Switching from Bloom to the Medicine Wheel

    Marcella LaFever•European Journal of Intercultural…•2016

  • Participatory action research and researcher’s responsibilities

    R Datta, Nyojy U Khyang et al.•International Journal of Social…•2014

  • Navajo and autism

    Steven K Kapp•Disability & Society•2011

  • Under-detection of autism among First Nations children in British Columbia, Canada

    Anne Lindblom•Disability & Society•2014

  • Indigenous Youth Participatory Action Research

    Katie Johnston-Goodstar, Katie Johnston‐Goodstar•Social Work•2013

  • Deficit, difference, or both? Autism and neurodiversity

    Steven K Kapp, Kristen Gillespie-Lynch et al.•Developmental Psychology•2013

  • The impact of indigenous cultural identity and cultural engagement on violent offending

    Open Access•Stephane M Shepherd, Rosa Hazel Delgado et al.•BMC Public Health•2017

  • More Than a Checklist

    Open Access•Michelle Pidgeon•Social Inclusion•2016

  • I'm a normal autistic person, not an abnormal neurotypical

    Open Access•Catherine D Tan•Social Science & Medicine•2018

  • Eliciting rich dialogue through the use of activity-oriented interviews

    Open Access•Naomi E Winstone, Naomi Winstone et al.•Childhood•2014

  • Decolonizing research

    Stephen Ashworth, Stephen H Ashworth•International Journal of Lifelong…•2021

  • Decolonizing Methodologies

    Linda Tuhiwai Smith•Decolonizing Methodologies•2021

  • Indigenization as inclusion, reconciliation, and decolonization

    Open Access•Adam Gaudry, Danielle Lorenz•AlterNative An International…•2018

Unique citing works2
Citations per year2
Citation span2025 - 2026 (2)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1

Tools

Open DOI
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae