Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Ethical Research in Refugee Communities and the Use of Community Participatory Methods

Bibliographic Data

ID2394639
AuthorsB Heidi Ellis (0000-0002-9916-1458, Children's Hospital Boston and Harvard Medical School, corresponding author), Maryam Kia-Keating, Maryam Kia‐Keating (0000-0002-0817-4473, University of California, Santa Barbara, corresponding author), Siraad Aden Yusuf (Whittier Street Health Center, corresponding author), Alisa Lincoln (0000-0003-2964-2413, Northeastern University), Alisa K Lincoln (0000-0003-0305-1180, Northeastern University, corresponding author), Abdirahman Nur (Somali Development Center, corresponding author)
Year2007
Volume44
Issue3
Pages459-481
Publication date2007-09-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueTranscultural Psychiatry (JOURNAL)
Journal identifiersISSN: 1363-4615 • E-ISSN: 1461-7471
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1363461507081642
PMID17938156
OpenAlexW2132898616
LanguageEN
Citations received92
References cited38

This article describes the distinct challenges associated with conducting ethical research with refugees. A case example of an ongoing study of stigma and access to mental health treatment among Somali refugee adolescents resettled in the USA is presented. In developing the study, standard research paradigms were critically examined in order to take account of the unique aspects of Somali culture and experience. Community participatory methods were adopted to uphold both ethical and methodological rigor in the research. A participatory approach for developing ethical protocols within different refugee communities is recommended

Alternative medicine · Citizen journalism · Community-based participatory research · Economic growth · Engineering ethics · Ethical issues · Informed consent · Mental health · Participatory action research · Photovoice · Political science · Psychiatry · Refugee · Research ethics · Sociology · Somali · Anthropology · Education and experiences of immigrants and refugees · Ethics and Legal Issues in Pediatric Healthcare · Law · Medicine · Migration, Health and Trauma · Psychology

  • Growing together

    Open Access•Lucy Holmyard, Avril Bellinger et al.•Families Relationships and…•2022

  • A contextualized perspective on research participation in collaborative refugee research

    Sofie De Smet, C Rousseau et al.•Cultural Diversity & Ethnic…•2021

  • Discrimination

    Open Access•Anna Ziersch, Clemence Due et al.•BMC Public Health•2020

  • Between the Devil and the Deep Blue Sea

    Open Access•Maryam Kia‐Keating, Sabrina R Liu et al.•Emerging Trends in the Social and…•2018

  • Bildung und Arbeit als Integrationsfeld für Geflüchtete

    Open Access•Martin Gibson-Kunze, Dorit Happ et al.•Bildung und Arbeit als…•2021

  • Mental health of Somali adolescent refugees

    B Heidi Ellis, Helen Z MacDonald et al.•Journal of Consulting and…•2008

  • Barriers to Health Care Access among Refugee Asylum Seekers

    Ramin Asgary, Nora Segar•Journal of Health Care for the…•2011

  • Resilience of children with refugee statuses

    Kerrie Pieloch, Kerrie A Pieloch et al.•Canadian Psychology/Psychologie…•2016

  • Building Community-Based Participatory Research Partnerships with a Somali Refugee Community

    Open Access•Crista Johnson, Crista E Johnson et al.•American Journal of Preventive…•2009

  • Mental Health of Refugee Children and Youth

    Open Access•R L Frounfelker, Diana Miconi et al.•Annual Review of Public Health•2020

  • Immigrants as Research Partners

    Open Access•Lisa M Vaughn, Farrah Jacquez et al.•Journal of Immigrant and Minority…•2017

  • Syrian Women Refugees

    Open Access•Sophie Alkhaled, Innan Sasaki•Organization Studies•2022

  • Perspectives of Somali Refugees on Post-traumatic Growth after Resettlement

    Open Access•Sarah Strode Ferriss, Shandra S Forrest-Bank•Journal of Refugee Studies•2018

  • Studying Refugee Settlement through Longitudinal Research

    Celia Mcmichael, C Nunn et al.•Journal of Refugee Studies•2014

  • Building an ethical research culture

    Open Access•Ahmad Albtran, Pınar Aksu et al.•Journal of Refugee Studies•2024

  • Human Agency and the Meaning of Informed Consent

    Richard Hugman, Luigi Bartolomei et al.•Journal of Refugee Studies•2011

  • Erosion of Meaning in Life

    Open Access•Rebecca Murphy, Brian Keogh et al.•Journal of Refugee Studies•2018

  • Unravelling the Meaning of Place and Spatial Mobility

    Open Access•Tobias Weidinger, Stefan Kordel et al.•Journal of Refugee Studies•2019

  • Research with Refugees in Fragile Political Contexts

    Open Access•Lea Müller-Funk•Journal of Refugee Studies•2020

  • Addressing Ethical and Methodological Challenges in Research with Refugee-background Young People

    Open Access•Katharina Block, Deborah Warr et al.•Journal of Refugee Studies•2012

  • Power, Participation, and ‘peer researchers’

    Open Access•K Pincock, William Bakunzi•Journal of Refugee Studies•2020

  • Perspectives on Transitions in Refugee Education

    Open Access•Caroline Spaas•Journal of Refugee Studies•2024

  • Researching the Resolution of Post-Disaster Displacement

    Megan Bradley, Angela Sherwood et al.•Journal of Refugee Studies•2016

  • Journey to Health

    Open Access•K Bruce Newbold, Marie Mckeary•Journal of Refugee Studies•2018

  • I’m Going to Tell You Something I Never Told Anyone”

    Open Access•Lisa Matos, Monica J Indart et al.•International Journal of…•2023

  • Development and Testing of a Community-Based Intervention to Address Intimate Partner Violence among Rohingya and Syrian Refugees

    Open Access•Leah Emily James, Leah James et al.•International Journal of…•2021

  • Living a Healthy Life in Australia

    Open Access•Carrie K Wong, Carolynne White et al.•International Journal of…•2019

  • Book Insecurity

    Open Access•Jeff Whittingham, Donna Wake Wake et al.•The Australian Journal of…•2025

  • Transforming health equity through academic integration

    Open Access•Sharon D Morrison, S Sudha et al.•Frontiers in Public Health•2026

  • To Whom Does the Knowledge Belong? The Researcher-Researched Relationship and Vulnerability in Refugee Studies

    Open Access•Mateusz Krawczyk, Joël Kikalage Dieudonné•ETHICS IN PROGRESS•2023

  • Reflections of methodological and ethical challenges in conducting research during Covid-19 involving resettled refugee youth in Canada

    Open Access•Zoha Salam, Elysee Nouvet et al.•Journal of Medical Ethics•2022

  • Beyond the dots on the page

    Open Access•Renée Crawford•International Journal of Music…•2020

  • Etyka w badaniu sytuacji granicznych

    Open Access•Anna Wylegała•Kultura i Społeczeństwo•2025

  • Mothering at All Costs

    Open Access•Nicole Zolman, Mary Bunn et al.•Family Process•2026

  • Board Games as Interview Tools

    Open Access•Annamaria Neag•Media and Communication•2019

  • Blockchain-based solution for addressing refugee management in the Global South

    Open Access•Desale T Abraha•Frontiers in Human Dynamics•2025

  • Language, culture and education

    Open Access•Azadeh Motevali Zadeh Ardakani•Journal for Multicultural Education•2025

  • A perinatal emotional-health group for migrant women

    Alice Neale, Anne PF Wand•International Journal of Culture…•2015

  • Visual methodologies for research with refugee youth

    Lindsay Vecchio, Karamjeet K Dhillon et al.•European Journal of Intercultural…•2017

  • The ethical challenges of researching refugee education

    Open Access•Lucy Bailey, Simon J Williams•Qualitative Research Journal•2018

  • Perceptions of obstetrical interventions and female genital cutting

    Crista Johnson-Agbakwu, Tara Helm et al.•Ethnicity and Health•2013

  • Exploring the intersection of human rights, health, disability and refugee status

    Ruth Wells, Mahmoud Murad et al.•Australian Journal of Human Rights•2020

  • Doing Cross-Cultural Research

    Open Access•Alex C Michalos, Joachim Vogel et al.•Doing Cross-Cultural Research•2008

  • Perceived Impact of Human Subjects Protection Training on Community Partners in Community-Based Participatory Research

    Nancy C Hawley, Mark L Wieland et al.•Progress in community health…•2014

  • Somali Perspectives on Physical Activity

    Kate Murray, Amina Sheik Mohamed et al.•Progress in community health…•2015

  • When Community Calls, We Collaborate! Community-Based Participatory Research With the Multilanguage Montagnard Refugee Community

    Sharon D Morrison, S Sudha et al.•Progress in community health…•2018

  • Using CBPR for Health Research in American Muslim Mosque Communities

    Amal Killawi, Michele Heisler et al.•Progress in community health…•2015

  • The ethics of mental health survey research in low- and middle- income countries

    Open Access•Sarah M Murray, Norman Ka et al.•Cambridge Prisms Global Mental…•2016

  • Ethical, methodological, and contextual challenges in research in conflict settings

    Open Access•Rima R Habib•Conflict and Health•2019

  • Facilitating research participation through a research navigator programme

    Open Access•Hägg Martinell A, Marie Tyrrell et al.•Conflict and Health•2025

  • Disseminating evidence-based research on mental health and coping to adolescents facing adversity in Lebanon

    Open Access•Tania Bosqui, Anas Mayya et al.•Conflict and Health•2020

  • A Qualitative Exploration of Somali Refugee Women’s Experiences with Family Planning in the U.S

    Open Access•Ying Zhang, Erin E McCoy et al.•Journal of Immigrant and Minority…•2019

  • Lessons Learned from Community-Led Recruitment of Immigrants and Refugee Participants for a Randomized, Community-Based Participatory Research Study

    Open Access•Marcelo M Hanza, Miriam Goodson et al.•Journal of Immigrant and Minority…•2016

  • Adaptation of an Acculturation Scale for African Refugee Women

    Open Access•Crista Johnson-Agbakwu, Patricia M Flynn et al.•Journal of Immigrant and Minority…•2014

  • The Impact of Acculturation Style and Acculturative Hassles on the Mental Health of Somali Adolescent Refugees

    Open Access•Alisa K Lincoln, Vanja Lazarevic et al.•Journal of Immigrant and Minority…•2015

  • Promoting the inclusion of Afghan women and men in research

    Open Access•Elisha Riggs, Jane Yelland et al.•International Journal for Equity…•2015

  • Ethics in Forced Migration Research

    Open Access•Christina Clark‐kazak•Journal on Migration and Human…•2021

  • Discrimination, marginalization, belonging, and mental health among Somali immigrants in North America

    Alisa K Lincoln, Emma Cardeli et al.•American Journal of Orthopsychiatry•2021

  • Relation of psychosocial factors to diverse behaviors and attitudes among Somali refugees

    Open Access•B Heidi Ellis, Saida M Abdi et al.•American Journal of Orthopsychiatry•2016

  • Subjective reactions to international research participation

    Jessica E Lambert, Alyssa Banford Witting et al.•American Journal of Orthopsychiatry•2019

  • Ethical issues in research with refugees

    Open Access•Patrícia D Deps, I Rezende et al.•Ethics Medicine and Public Health•2022

  • Sampling challenges in a study examining refugee resettlement

    Open Access•Ruqayya Sulaiman-Hill, Cheryl MR Sulaiman-Hill et al.•BMC International Health and…•2011

  • How do people seeking asylum in the United Kingdom conceptualize and cope with the asylum journey

    Thomas Hoare, Andrew Vidgen et al.•Medicine Conflict & Survival•2020

  • ‘This doctor, I not trust him, I’m not safe’

    Open Access•P Majumder, Michelle O’reilly et al.•International Journal of Social…•2015

  • Associations between social network characteristics and suicidal thoughts among refugees in the Southwest U.S

    Mee Young Um, Arati Maleku et al.•Death Studies•2026

  • Through their eyes

    Zoë Robertson, Sandra Gifford et al.•Visual Studies•2016

  • Confidentiality, power relations and evaluation of potential harm in the study of the personal and organizational networks of travel agents in Moscow

    Open Access•I Maya-Jariego, Deniza Alieva et al.•Social Networks•2021

  • A mixed methods systematic review of studies examining the relationship between housing and health for people from refugee and asylum seeking backgrounds

    Open Access•Anna Ziersch, Clemence Due•Social Science & Medicine•2018

  • Sense of identity among young people with refugee backgrounds

    Open Access•Farnaz Shahimi, Katharina Block et al.•Children and Youth Services Review•2024

  • Ethical Community-Engaged Research

    L Mikesell, E Bromley et al.•American Journal of Public Health•2013

  • Volunteer Mentor Experiences of Mentoring Forced Migrants in the United Kingdom

    Open Access•Iona Tynewydd, Joanna Semlyen et al.•Refuge Canada s Journal on Refuge•2021

  • Mutual benefits

    Open Access•Justin Rogers, Sam Carr et al.•Children and Youth Services Review•2018

  • The Israeli preschool from the perspective of Eritrean asylum seekers

    Open Access•Iris Zadok, Shlomit Boshy•International Journal of…•2023

  • University-based services for asylum seekers on Guam

    Open Access•Seyda Türk Smith, Kyle D Smith et al.•International Journal of…•2010

  • The Convention on the Rights of Persons With Disabilities

    Jo Durham, Claire E Brolan et al.•American Journal of Public Health•2014

  • When 'Do No Harm' Is Not Enough

    Richard Hugman, Eileen Pittaway et al.•The British Journal of Social Work•2011

  • Discrimination and mental health among Somali refugee adolescents

    B Heidi Ellis, Helen Z MacDonald et al.•American Journal of Orthopsychiatry•2010

  • Navigating Trust and Distrust in the Refugee Community of Malta

    Open Access•L Gandolfo•Journal of International…•2022

  • "Do I Have to Sign My Real Name?" Ethical and Methodological Challenges in Multilingual Research with Adult SLIFE Learning French as a Second Language

    Open Access•Alexandra H Michaud, Alexandra Michaud et al.•Languages•2022

  • Exploring health misinformation on WhatsApp within the African migrant and refugee community in Southeast Queensland (SEQ)

    Open Access•Sidiki Coulibaly•Media International Australia•2023

  • Methodological and Ethical Challenges in Partnering for Refugee Research

    Levi Obijiofor, Val Colic-Peisker et al.•Journal of Immigrant & Refugee…•2018

  • I Look at You and See You Looking at Me

    Open Access•Sofie De Smet, C Rousseau et al.•Qualitative Health Research•2020

  • "Exploring "Language of Suffering

    Open Access•Maya Fennig, Myriam Denov•Qualitative Health Research•2025

  • Holding Harm

    Open Access•Lucia De Haene, Hans Grietens et al.•Qualitative Health Research•2010

  • Nothing can defeat combined hands (Abashize hamwe ntakibananira)

    Open Access•Theresa Stichick Betancourt, Theresa Betancourt et al.•Social Science & Medicine•2011

  • Co-Creating Visual Stories as an Arts-Based Method for Equity

    Open Access•Shima Dadkhahfard, Miwa Aoki Takeuchi•International Journal of…•2025

  • Talking to Migrants

    Sonja Wolf•Geopolitics•2021

  • Ethical considerations of 'going public

    Open Access•Lior Birger, Shlomo Shoham•New Community•2024

  • Cross-culturally adapting the GHQ-12 for use with refugee populations

    Open Access•Maya Fennig•Transcultural Psychiatric…•2024

  • Mental Health Service Utilization of Somali Adolescents

    Open Access•B Heidi Ellis, Alisa K Lincoln et al.•Transcultural Psychiatry•2010

  • In Different Voices

    Open Access•Anet Kate, Jane Verbitsky et al.•Journal of International…•2019

  • Interdisciplinary Wellbeing Construct Developed Among Resettled Refugees

    Open Access•Renée Martin-Willett, Meridith Blevins et al.•Journal of International…•2019

  • The risks and benefits of participating in trauma‐focused research studies

    Open Access•Elana Newman, Danny G Kaloupek•Journal of Traumatic Stress•2004

  • Research participants telling the truth about their lives

    Kathryn A Becker‐Blease, Jennifer J Freyd•American Psychologist•2006

  • What Makes Clinical Research Ethical?

    Ezekiel J Emanuel•JAMA•2000

  • Participatory research maximises community and lay involvement

    Open Access•Ann C Macaulay, L E Commanda et al.•BMJ•1999

  • The Psychiatric Effects of Massive Trauma on Cambodian Children

    Open Access•J David Kinzie, William H Sack et al.•Journal of the American Academy…•1986

  • Predisplacement and Postdisplacement Factors Associated With Mental Health of Refugees and Internally Displaced Persons

    Matthew Porter, Nick Haslam•JAMA•2005

  • Prenatal Care Use Among Women of Low Income

    Open Access•Wendy Sword•Qualitative Health Research•2003

  • 'Eloquent Chaos' in the Oral Discourse of Killing Fields Survivors

    Open Access•Edwina S Uehara, Martha Farris et al.•Culture Medicine and Psychiatry•2001

  • Motivations, Understanding, and Voluntariness in International Randomized Trials

    Norman Ka, Nancy E Kass et al.•IRB Ethics and Human Research•2005

  • Coping With Trauma and Hardship Among Unaccompanied Refugee Youths From Sudan

    Open Access•Janice H Goodman•Qualitative Health Research•2004

  • Emerging paradigms in the mental health care of refugees

    Open Access•Charles Watters•Social Science & Medicine•2001

  • A critique of seven assumptions behind psychological trauma programmes in war-affected areas

    Open Access•Derek Summerfield•Social Science & Medicine•1999

  • Testimonial Psychotherapy for Adolescent Refugees

    Open Access•Stuart L Lustig, Stevan M Weine et al.•Transcultural Psychiatry•2004

  • Childhood, War, Refugeedom and 'Trauma

    Open Access•Derek Summerfield•Transcultural Psychiatry•2000

Unique citing works92
Citations per year5,11
Citation span2008 - 2026 (19)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 90

Tools

Open DOISci-Hub
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae