Improving the Safety and Quality of Care for Children and Young People With Intellectual and Developmental Disability. The Motivated for Change Programme in a Paediatric Emergency Department Setting. A Mixed Methods Study

Bibliographic Data

ID24020866
AuthorsNatalie Ong (0000-0002-0962-443X, The University of Sydney, corresponding author), Sarah Ghasem Zadeh (The University of Sydney), Jerzy Zieba (The University of Sydney), Karl Pobre (0009-0006-0988-6591, Children's Hospital at Westmead), Gail Tomsic (0000-0002-1197-1828, Children's Hospital at Westmead), Jacqueline Milne (Children's Hospital at Westmead), Shefali Jani (0000-0001-8242-9879, Children's Hospital at Westmead), Natalie Silove (0000-0002-1311-773X, Children's Hospital at Westmead)
Year2026
Volume29
Issue4
Pagese70776-e70776
Publication date2026-08-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.70776
PMID42542976
OpenAlexW7172199841
LanguageEN
References cited31

BACKGROUND: Children and young people with intellectual and developmental disability have long been known to suffer from inequities in accessing safe and quality health care. These challenges are most felt within the emergency department due to its busy, crowded, and overstimulating environments with staff that are not trained to provide reasonably adjusted care. AIMS: The study is an evaluation using qualitative and quantitative methods of a continuing education and quality improvement programme designed to increase the knowledge, skills, and confidence of healthcare staff in providing reasonable adjustments to children and young people with intellectual disability in hospitals. METHODS: This study evaluated the Motivated for Change programme, which uses Behavioural change, Adult Learning, and Quality Improvement strategies to drive practice change and service improvement. A hundred and thirty-one and 89 staff participated in a pre- and post-intervention survey. Interviews were conducted with parents of children and young people with intellectual and developmental disability attending the emergency department. Observational studies were also conducted in the pre- and post-intervention phase. These were transcribed, categorised, and coded with themes derived. Consensus was reached through meetings with the research team. RESULTS: The Motivated for Change programme has demonstrated significant increases in staff knowledge, skills, and experience in providing safe and quality care for these children and young people. Evidence of change is reflected in the parent and staff interview and observational study themes. In addition, staff were further motivated to undertake quality improvement projects, develop an in-house training programme to provide ongoing training for new staff, and make further improvements in the department. CONCLUSIONS: The Motivated for Change programme has demonstrated its efficacy in enabling changes in the practice of reasonable adjustments and the emergence of local champions for sustained efforts for ongoing improvements in safety and quality of care. PATIENT AND PUBLIC INVOLVEMENT: The development of the research question and outcome measures was informed by data from previous research publications involving parents and staff. We sought input from a parent advisory committee in the design of the study. Parents were not involved in the recruitment and conduct of the study. Results were presented to the parent advisory at the end of the study.

Emergency department · Health care · Intellectual disability · Observational study · Program evaluation · Qualitative research · Quality (philosophy) · Quality management · Service (business) · Service delivery framework · Adolescent and Pediatric Healthcare · Down syndrome and intellectual disability research · Emergency and Acute Care Studies

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