Taking care of inpatients’ relatives
A qualitative and multi-site study on the pragmatics of the Visitors’ Book in Intensive Care Units
Bibliographic Data
| ID | 24033780 |
|---|---|
| Authors | L Caronia (0000-0002-8912-0599, University of Bologna, corresponding author), Federica Ranzani (0000-0003-3705-6596, University of Bologna), Giulia Benericetti (0009-0008-6615-4391, University of Bologna), Arturo Chieregato (0000-0001-6690-8597, Ospedale Maggiore) |
| Year | 2026 |
| Pages | 100847 |
| Publication date | 2026-08-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | SSM - Qualitative Research in Health (JOURNAL) |
| Journal identifiers | ISSN: 2667-3215 • E-ISSN: 2667-3215 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.ssmqr.2026.100847 |
| OpenAlex | W7202122578 |
| Language | EN |
| References cited | 89 |
Hospitalization in Intensive Care Units (ICUs) is widely acknowledged as a traumatic experience not only for patients but also for their family members. While prior research has analyzed narrative-based practices to address patients’ traumatic experiences in the ICU (e.g., the patient ICU diary), little attention has been paid to how narrative tools are used to support the needs of inpatients’ relatives. To fill this gap, this article aims to analyze the uses and functions of the Visitors’ Book (VB), i.e., a textual artifact implemented in three Italian ICUs where inpatients’ relatives can leave written traces to communicate and share their own ICU experience. The study adopts a qualitative, multi-site, and corpus-based design to gather naturally occurring texts written by inpatients’ relatives in the VB (N = 1077). It adopts thematic analysis to explore the pragmatics of the text, i.e., the most recurring discursive actions accomplished by inpatients’ relatives to cope with their experience in ICU. The primary finding of the study suggests that the VB is mainly used by inpatients’ relatives as a means to create, maintain, or reinforce a relationship with the staff of healthcare professionals. This finding corroborates the intended function of this artefact that was designed as a practical implementation of guidelines fostering a “patient and family -centered approach” to critical care. In the conclusion, implications for policy and practices are discussed.
Context (archaeology) · Intensive care · Intensive care unit · Pragmatics · Qualitative research · Family and Patient Care in Intensive Care Units · Intensive Care Unit Cognitive Disorders · Palliative Care and End-of-Life Issues
The Role of the Reader
Living Narrative
Evaluation in Text
The World of the Gift
Prescribing under Pressure
Narrative Medicine
Spirituality, Religion, and Health
Patients’ participation in medical care
Sociomaterial Practices
Interactional units in conversation
Agreeing and disagreeing with assessments
Narrative Medicine
The stance triangle
Communicating compassion in organizations
My Paradoxical Sunrises and the Ongoing Amazing Grace of Nicu Narrative Medicine
A worked example of Braun and Clarke’s approach to reflexive thematic analysis
Textual Agency
Materiality and Organizing
To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales
Reflecting on reflexive thematic analysis
Compassion at Work
How is power reflected in the patient centred care literature? A critical review of power in the centredness literature through a social science lens
Patient-centredness
The pursuit of quality in grounded theory
Achieving inter-rater reliability in text-based studies
Compliments on a Home Birth Helpline
Patient "Demand" for Medical Interventions
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Extreme case formulations
Assessing the Effects of Physician-Patient Interactions on the Outcomes of Chronic Disease
Using thematic analysis in psychology
Arriving at no
Action formation and its epistemic (and other) backgrounds
On assessing situations and events in conversation
Expression and Meaning
Hope Work in the Care of Seriously Ill Patients
Diaries Written for ICU Patients
Caring for care
Compassion in Organizational Life
Interactional use of compliments in mental health rehabilitation
Between semiotics and pragmatics
The epistemics of social relations
Intercoder Reliability in Qualitative Research
Death by Document
The Engaged Patient
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Is Sybil there? the structure of some American English directives
Speech Acts
Pragmatics
| Citation velocity | historical |
|---|---|
| Highly cited | No |