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Reconsidering the Inclusive Research Approach

Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges

Bibliographic Data

ID2411547
AuthorsJung Hyoung Yoon (0000-0002-8872-3726)
Year2023
Volume22
Publication date2023-10-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueInternational Journal of Qualitative Methods (JOURNAL)
Journal identifiersISSN: 1609-4069 • E-ISSN: 1609-4069
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/16094069231191686
OpenAlexW4386453900
LanguageEN
Citations received2
References cited36

Qualitative researchers who need to interview people with cognitive disability, including intellectual, developmental, mental disabilities and Autism Spectrum Disorder (ASD), can experience limitations in implementing an inclusive research approach using conventional methods like verbal communication. In this paper 'proxy intervention interview' is shown to be an inclusive research approach for incorporating the voices of artists who cannot articulate their thoughts or describe their own experiences concerning their career development. The author introduces a step-by-step process for implementing this method, including such aspects as research design, recruitment, and informed consent. Five key ethical considerations are suggested for designing an appropriate inclusive research approach to encourage the participation of people with cognitive disability, regardless of their level of capacity

Autism · Autism spectrum disorder · Cognition · Cognitive disabilities · Developmental psychology · Inclusion (mineral · Intellectual disability · Intervention (counseling · Proxy (statistics · Psychiatry · Qualitative research · Semi-structured interview · Social science · Sociology · Computer Science · Disability Rights and Representation · Family and Disability Support Research · Health Policy Implementation Science · Psychology · Applied Psychology · Social Psychology

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Unique citing works2
Citations per year2
Citation span2025 - 2025 (1)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 2

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